National Brain Tumor Society
National Brain Tumor Society reported $15.1 million in revenue and $13.4 million in expenses for calendar year 2025. Of every $100 it spent, $84.46 went to program services, $7.47 to management and general costs and $8.07 to fundraising. Its largest source of revenue was contributions and grants: 96.6% of the total. The highest compensation it reported for one person was $359,892 (CEO). 18 people received more than $100,000 in reportable compensation. Revenue rose 6% between 2019 and 2025. Source: Form 990, 2025.
Where $100 of spending went
Calendar year 2025 · Form 990, Part IX, line 25 · total expenses $13MFor context, the median across 2,433 covered unclassified charities: $88.27 programs, $11.68 management, $0.05 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2025 · Form 990, Part VIII · total revenue $15MThe 990 scorecard · same measures for every charity, no grades
| Measure | 2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 84.5% | 86.7% |
| Management & general Part IX 25(C) ÷ 25(A) | 7.5% | 11.5% |
| Fundraising Part IX 25(D) ÷ 25(A) | 8.1% | 0.0% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.07 | $0.01 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 96.6% | 29.9% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.0% | 3.8% |
| Program service revenue share Part VIII 2g ÷ 12 | 0.0% | 58.9% |
| Highest reported compensation Part VII-A, columns D–F | $359,892 | $301,601 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 2.69% | 1.38% |
| People paid over $100,000 Part VII, line 2 | 18 | 6 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 16.7 | 6.8 |
| Independent voting board members Part VI 1a–1b | 15 of 15 | 100.0% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2025 · Form 990, Part III · the three largest programs by expenseOur defeat strategy drives and influences best-in-class medical research to develop and deliver new innovative treatments and potential cures to patients with brain tumors as quickly as possible. Patients and caregivers are our priority. We focus on groundbreaking research initiatives with the potential to translate promising science from the lab into treatments that improve survival and quality of life. We're accelerating breakthroughs that will have a profound impact on the Brain Tumor community. Our research initiatives advance treatments for patients of all ages across Brain Tumor types.…
Our connect strategy convenes, educates, and unites the Brain Tumor community. We bring stakeholders together, to address barriers to the development of new treatments and better health care. Nbts leads several national awareness campaigns to educate the public about brain tumors and the importance of reducing the burden of them. We equip patients and care partners with tools and resources to navigate every step of their unique health care journeyfrom understanding their diagnosis and building their medical team to making decisions about treatment. We organize events that bring the Brain…
Our change strategy fuels the voice of the Brain Tumor community to advocate public policy. We ensure the community's needs are reflected in national medical research and health care policy. Together, we advocate for the federal government to make strategic investments in Brain Tumor research, improve health care delivery, reduce health disparities, and raise the priority level for our community's needs. Over 18,000 volunteer advocates across all 50 states affect change at all levels annually. We mobilize our community on policy issues to urge government officials to enact policies that…
Highest reported compensation
2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| CEO Officer, 40.00 hrs/week | $337,934 | $0 | $21,958 | $359,892 |
| CHIEF DEVELOPMENT OFFICER Key employee, 40.00 hrs/week | $246,498 | $0 | $40,641 | $287,139 |
| MANAGING DIRECTOR, BTIF Highest compensated employee, 40.00 hrs/week | $225,984 | $0 | $26,818 | $252,802 |
| CHIEF OPERATING OFFICER Officer, 40.00 hrs/week | $175,357 | $0 | $38,927 | $214,284 |
| VP AND COUNSEL, GOVERNMENT RELATIONS Highest compensated employee, 40.00 hrs/week | $174,989 | $0 | $34,524 | $209,513 |
| CHIEF FINANCIAL OFFICER Officer, 40.00 hrs/week | $157,708 | $0 | $40,970 | $198,678 |
| CHIEF OF MARKETING & COMMUNICATIONS Highest compensated employee, 40.00 hrs/week | $188,204 | $0 | $6,780 | $194,984 |
| SR. DIRECTOR OF RESEARCH Highest compensated employee, 40.00 hrs/week | $163,496 | $0 | $27,409 | $190,905 |
18 people received more than $100,000 in reportable compensation from National Brain Tumor Society (Part VII, line 2). Compensation of current officers, directors and key employees totaled $1.1M (Part IX, line 5).
7 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b15 · 15 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bYes
- Employees Part I, line 560
- Volunteers Part I, line 630,964
Largest outside contractors
2025 · Form 990, Part VII, Section B · businesses onlyIndividuals listed as contractors are left out. 3 contractors were paid more than $100,000 in all.
Private foundation grants it received
97 private foundations reported grants to National Brain Tumor Society totaling $808K on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from National Brain Tumor Society's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for National Brain Tumor Society, you can publish a response that is linked from this page.
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Of every $100 National Brain Tumor Society spent in 2025, $84.46 went to programs. The full breakdown, from its IRS Form 990:
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All unclassified charities · Largest charities in Massachusetts
Questions people ask
How much of National Brain Tumor Society's spending goes to programs?
In calendar year 2025, National Brain Tumor Society reported that 84.5% of its $13.4 million in expenses went to program services, 7.5% to management and general and 8.1% to fundraising (Form 990, Part IX).
How much does National Brain Tumor Society pay its top executive?
The largest total compensation National Brain Tumor Society reported for one person in calendar year 2025 was $359,892, for the role of CEO (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does National Brain Tumor Society get its money?
Of $15.1 million in revenue in calendar year 2025, 96.6% came from contributions and grants and 0.0% from program service revenue (Form 990, Part VIII).
Is National Brain Tumor Society a registered charity?
The IRS lists EIN 04-3068130 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024, 2025. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2025: Form 990 for calendar year 2025, object 202631879349301403 · read the filing · XML
- 2024: Form 990 for calendar year 2024, object 202521789349300202 · read the filing
- 2023: Form 990 for calendar year 2023, object 202412189349301506 · read the filing
- 2022: Form 990 for calendar year 2022, object 202332379349301003 · read the filing
- 2021: Form 990 for calendar year 2021, object 202212589349301416 · read the filing
- 2020: Form 990 for calendar year 2020, object 202101329349302065 · read the filing
- 2019: Form 990 for calendar year 2019, object 202001219349301325 · read the filing
All filings for EIN 04-3068130: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.