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American Epilepsy Society
American Epilepsy Society reported $11.9 million in revenue and $11.6 million in expenses for the fiscal year ending June 30, 2025. Of every $100 it spent, $88.70 went to program services, $9.90 to management and general costs and $1.40 to fundraising. Its largest source of revenue was program service revenue such as fees, sales and contracts: 68.5% of the total. The highest compensation it reported for one person was $501,808 (CEO UNTIL DEC 2024). 15 people received more than $100,000 in reportable compensation. Revenue rose 9% between FY2020 and FY2025. Source: Form 990, FY2025.
Where $100 of spending went
The fiscal year ending June 30, 2025 · Form 990, Part IX, line 25 · total expenses $12MFor context, the median across 314 covered diseases, disorders & medical disciplines charities: $88.73 programs, $10.89 management, $0.38 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
The fiscal year ending June 30, 2025 · Form 990, Part VIII · total revenue $12MThe 990 scorecard · same measures for every charity, no grades
| Measure | FY2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 88.7% | 86.7% |
| Management & general Part IX 25(C) ÷ 25(A) | 9.9% | 10.6% |
| Fundraising Part IX 25(D) ÷ 25(A) | 1.4% | 0.4% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.06 | $0.03 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 22.2% | 24.7% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 2.3% | 0.6% |
| Program service revenue share Part VIII 2g ÷ 12 | 68.5% | 59.5% |
| Highest reported compensation Part VII-A, columns D–F | $501,808 | $391,657 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 4.32% | 1.45% |
| People paid over $100,000 Part VII, line 2 | 15 | 10 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 20.0 | 7.6 |
| Independent voting board members Part VI 1a–1b | 11 of 11 | 100.0% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
FY2025 · Form 990, Part III · the three largest programs by expenseMeeting for medical professionals to enhance knowledge about the latest therapies to treat epilepsy and steps toward finding a cure for epilepsy
Highest reported compensation
FY2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| CEO UNTIL DEC 2024 Officer, 45.00 hrs/week | $466,434 | $0 | $35,374 | $501,808 |
| ASSOCIATE EXECUTIVE DIRECTOR Highest compensated employee, 40.00 hrs/week | $223,016 | $0 | $38,911 | $261,927 |
| DIRECTOR, TECHNOLOGY SOLUTIONS Highest compensated employee, 40.00 hrs/week | $171,656 | $0 | $31,508 | $203,164 |
| DIRECTOR, EDUCATION Highest compensated employee, 40.00 hrs/week | $163,255 | $0 | $37,443 | $200,698 |
| SENIOR MANAGER, CLINICAL Highest compensated employee, 40.00 hrs/week | $127,012 | $0 | $28,272 | $155,284 |
| ASSOCIATE EXECUTIVE DIRECTOR Highest compensated employee, 40.00 hrs/week | $136,458 | $0 | $5,615 | $142,073 |
| CEO SINCE NOV 2024 Officer, 45.00 hrs/week | $58,974 | $0 | $2,071 | $61,045 |
15 people received more than $100,000 in reportable compensation from American Epilepsy Society (Part VII, line 2). Compensation of current officers, directors and key employees totaled $555K (Part IX, line 5).
6 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
FY2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b11 · 11 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4No
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bYes
- Employees Part I, line 531
- Volunteers Part I, line 6825
Largest outside contractors
FY2025 · Form 990, Part VII, Section B · businesses only| IMS TECHNOLOGY SERVICES Annual meeting audio visual | $1,037,177 |
Individuals listed as contractors are left out. 2 contractors were paid more than $100,000 in all.
Private foundation grants it received
3 private foundations reported grants to American Epilepsy Society totaling $126K on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from American Epilepsy Society's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for American Epilepsy Society, you can publish a response that is linked from this page.
Share or embed this breakdown
Of every $100 American Epilepsy Society spent in FY2025, $88.70 went to programs. The full breakdown, from its IRS Form 990:
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Questions people ask
How much of American Epilepsy Society's spending goes to programs?
In the fiscal year ending June 30, 2025, American Epilepsy Society reported that 88.7% of its $11.6 million in expenses went to program services, 9.9% to management and general and 1.4% to fundraising (Form 990, Part IX).
How much does American Epilepsy Society pay its top executive?
The largest total compensation American Epilepsy Society reported for one person in the fiscal year ending June 30, 2025 was $501,808, for the role of CEO UNTIL DEC 2024 (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does American Epilepsy Society get its money?
Of $11.9 million in revenue in the fiscal year ending June 30, 2025, 22.2% came from contributions and grants (including 2.3% from government grants) and 68.5% from program service revenue (Form 990, Part VIII).
Is American Epilepsy Society a registered charity?
The IRS lists EIN 04-6112600 as a 501(c)(3) organization (publicly supported organization (509(a)(2))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- FY2025: Form 990 for the fiscal year ending June 30, 2025, object 202601219349301675 · read the filing · XML
- FY2024: Form 990 for the fiscal year ending June 30, 2024, object 202531189349302238 · read the filing
- FY2023: Form 990 for the fiscal year ending June 30, 2023, object 202430549349301813 · read the filing
- FY2022: Form 990 for the fiscal year ending June 30, 2022, object 202331159349300323 · read the filing
- FY2021: Form 990 for the fiscal year ending June 30, 2021, object 202231129349300713 · read the filing
- FY2020: Form 990 for the fiscal year ending June 30, 2020, object 202101379349300190 · read the filing
All filings for EIN 04-6112600: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.