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Institute for Neurodegenerative Disorders

New Haven, CT · EIN 06-1582206 · 501(c)(3) · Publicly supported organization (170(b)(1)(A)(vi))
Latest filing: Form 990 for calendar year 2024 (tax year 2024) · View the filing · Correct or respond

Institute for Neurodegenerative Disorders reported $22.0 million in revenue and $18.9 million in expenses for calendar year 2024. Of every $100 it spent, $94.08 went to program services, $5.92 to management and general costs and $0.00 to fundraising. Its largest source of revenue was program service revenue such as fees, sales and contracts: 97.9% of the total. The highest compensation it reported for one person was $439,831 (CHIEF OP. OF). 30 people received more than $100,000 in reportable compensation. Revenue rose 250% between 2019 and 2024. Source: Form 990, 2024.

Where $100 of spending went

Calendar year 2024 · Form 990, Part IX, line 25 · total expenses $19M

For context, the median across 169 covered medical research charities: $87.02 programs, $12.87 management, $0.11 fundraising (medians computed separately, so they may not sum to $100).

Where $100 of revenue came from

Calendar year 2024 · Form 990, Part VIII · total revenue $22M

The 990 scorecard · same measures for every charity, no grades

2024 filing. Median across 169 covered charities in this category, from their latest filings.
Measure2024Median
Program services
Part IX 25(B) ÷ 25(A)
94.1%83.9%
Management & general
Part IX 25(C) ÷ 25(A)
5.9%12.4%
Fundraising
Part IX 25(D) ÷ 25(A)
0.0%0.1%
Fundraising cost per $1 of contributions
Part IX 25(D) ÷ Part VIII 1h
Not reported$0.01
Contributions & grants share of revenue
Part VIII 1h ÷ 12
0.2%72.7%
Government grants share of revenue
Part VIII 1e ÷ 12
0.0%0.0%
Program service revenue share
Part VIII 2g ÷ 12
97.9%5.8%
Highest reported compensation
Part VII-A, columns D–F
$439,831$628,890
Highest compensation as share of expenses
Part VII-A ÷ Part IX 25(A)
2.32%1.94%
People paid over $100,000
Part VII, line 2
3018
Net assets, in months of expenses
Part X 33(B) ÷ monthly expenses
5.413.3
Independent voting board members
Part VI 1a–1b
8 of 893.8%

A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.

What the money paid for, in its own words

2024 · Form 990, Part III · the three largest programs by expense
$18M expenses · 100.0% of program spending · revenue $21M

The institute for neurodegenerative disorders, inc. Is a non-profit 501(c)(3) research institute dedicated to the development of diagnostic tools and improved treatments for neurologic disorders like parkinson disease, alzheimer disease and huntington disease. We will accomplish our mission through clinical research

Highest reported compensation

2024 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here
RoleFrom this orgFrom related orgsOtherTotal
CHIEF OP. OF
Officer, 40.00 hrs/week
$331,671$0$108,160$439,831
DISTINGUISHE
Director/trustee, officer, 40.00 hrs/week
$332,726$0$104,599$437,325
CHIEF FIN. O
Officer, 40.00 hrs/week
$277,324$0$99,775$377,099
EMPLOYEE
Key employee, 40.00 hrs/week
$283,983$0$43,272$327,255
EMPLOYEE
Key employee, 40.00 hrs/week
$248,052$0$75,747$323,799
EMPLOYEE
Key employee, 40.00 hrs/week
$223,811$0$26,736$250,547
EMPLOYEE
Highest compensated employee, 40.00 hrs/week
$189,675$0$51,599$241,274
EMPLOYEE
Highest compensated employee, 40.00 hrs/week
$149,389$0$66,045$215,434

30 people received more than $100,000 in reportable compensation from Institute for Neurodegenerative Disorders (Part VII, line 2). Compensation of current officers, directors and key employees totaled $2.2M (Part IX, line 5).

6 years of filings

Form 990, Parts I, VII, IX and X · each row is that year's own filing, linked
RevenueExpenses
$0$10M$20M$30M$40M201920202021202220232024$22M$19M
FilingRevenueExpensesProgramsNet assetsTop pay
2024 ⓘ$22M$19M94.1%$8.6M$439,831
2023 ⓘ$18M$16M95.0%$5.5M$420,044
2022 ⓘ$12M$11M92.3%$3.7M$389,902
2021 ⓘ$8.7M$8.1M89.6%$2.8M$393,382
2020 ⓘ$5.7M$5.8M82.6%$2.2M$305,874
2019 ⓘ$6.3M$6.0M90.6%$2.3M$269,967

Governance answers, as filed

2024 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means
  • Voting board members, and how many are independent Part VI, lines 1a–1b8 · 8 independent
  • Audited financial statements Part XII 2bYes
  • Conflict-of-interest policy Part VI 12aYes
  • Whistleblower policy Part VI 13Yes
  • Document retention policy Part VI 14Yes
  • Independent process for top executive pay Part VI 15aYes
  • Board given the 990 before filing Part VI 11aYes
  • Family or business ties among insiders Part VI 2Yes
  • Aware of a significant diversion of assets Part VI 5No
  • Excess benefit transaction with an insider Part IV 25aNo
  • Loans to or from insiders outstanding Part IV 26No
  • Lobbying, or a 501(h) election in effect Part IV 4No
  • Over $15,000 of professional fundraising services Part IV 18No
  • Over $10,000 of activity outside the U.S. Part IV 14bNo
  • Employees Part I, line 550
  • Volunteers Part I, line 69

Largest outside contractors

2024 · Form 990, Part VII, Section B · businesses only
INVICRO LLC
Proj mgmt/rent
$5,162,903
PANACEA ENTERPRISES LLC
P2p study
$370,258

Individuals listed as contractors are left out. 3 contractors were paid more than $100,000 in all.

Private foundation grants it received

1 private foundation reported grants to Institute for Neurodegenerative Disorders totaling $5,000 on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.

Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.

Correct a figure or respond

Every number above is copied from Institute for Neurodegenerative Disorders's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Institute for Neurodegenerative Disorders, you can publish a response that is linked from this page.

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Questions people ask

How much of Institute for Neurodegenerative Disorders's spending goes to programs?

In calendar year 2024, Institute for Neurodegenerative Disorders reported that 94.1% of its $18.9 million in expenses went to program services, 5.9% to management and general and 0.0% to fundraising (Form 990, Part IX).

How much does Institute for Neurodegenerative Disorders pay its top executive?

The largest total compensation Institute for Neurodegenerative Disorders reported for one person in calendar year 2024 was $439,831, for the role of CHIEF OP. OF (Form 990, Part VII, including compensation from related organizations and other compensation).

Where does Institute for Neurodegenerative Disorders get its money?

Of $22.0 million in revenue in calendar year 2024, 0.2% came from contributions and grants and 97.9% from program service revenue (Form 990, Part VIII).

Is Institute for Neurodegenerative Disorders a registered charity?

The IRS lists EIN 06-1582206 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.

Sources

  • 2024: Form 990 for calendar year 2024, object 202503219349314975 · read the filing · XML
  • 2023: Form 990 for calendar year 2023, object 202433199349305133 · read the filing
  • 2022: Form 990 for calendar year 2022, object 202323119349301997 · read the filing
  • 2021: Form 990 for calendar year 2021, object 202223139349302387 · read the filing
  • 2020: Form 990 for calendar year 2020, object 202102849349300825 · read the filing
  • 2019: Form 990 for calendar year 2019, object 202002899349300410 · read the filing

All filings for EIN 06-1582206: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.