Children's Tumor Foundation
Children's Tumor Foundation reported $19.7 million in revenue and $19.0 million in expenses for calendar year 2024. Of every $100 it spent, $83.77 went to program services, $8.03 to management and general costs and $8.20 to fundraising. Its largest source of revenue was contributions and grants: 95.7% of the total. The highest compensation it reported for one person was $468,352 (PRESIDENT). 19 people received more than $100,000 in reportable compensation. Revenue rose 10% between 2019 and 2024. Source: Form 990, 2024.
Where $100 of spending went
Calendar year 2024 · Form 990, Part IX, line 25 · total expenses $19MFor context, the median across 169 covered medical research charities: $87.02 programs, $12.87 management, $0.11 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2024 · Form 990, Part VIII · total revenue $20M- Contributions & grants (non-government)$95.51 $19M
- Government grants$0.04 $7,495
- Program service revenue$0.13 $25,665
- Investment income$4.32 $854K
Other revenue was negative: −$34,119. The bar shows the positive sources only.
The 990 scorecard · same measures for every charity, no grades
| Measure | 2024 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 83.8% | 83.9% |
| Management & general Part IX 25(C) ÷ 25(A) | 8.0% | 12.4% |
| Fundraising Part IX 25(D) ÷ 25(A) | 8.2% | 0.1% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.08 | $0.01 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 95.7% | 72.7% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.0% | 0.0% |
| Program service revenue share Part VIII 2g ÷ 12 | 0.1% | 5.8% |
| Highest reported compensation Part VII-A, columns D–F | $468,352 | $628,890 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 2.46% | 1.94% |
| People paid over $100,000 Part VII, line 2 | 19 | 18 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 16.9 | 13.3 |
| Independent voting board members Part VI 1a–1b | 25 of 25 | 93.8% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2024 · Form 990, Part III · the three largest programs by expenseResearch - the children's Tumor Foundation supports nf research through a range of funding mechanisms. Our investments in research are three-fold: 1) to attract talented investigators to nf research; 2) to support innovative research; and 3) to foster collaborative efforts to find treatments and cures for neurofibromatosis. The foundation has been at the forefront of key advances in nf research including funding the laboratories that discovered the nf1 and nf2 genes, supporting groundbreaking clinical trials, and establishing the first nationwide nf clinic network and nf patient registry. The…
Public education and patient support - the children's Tumor Foundation engages in public education through its website, quarterly newsletters, media coverage, and its national programs. Through our nf endurance and nf walk programs, the foundation highlights nf heroes and their triumphant spirits. The foundation also sponsors benefit dinners and regional and local events to promote awareness. The children's Tumor Foundation is dedicated to supporting patients with nf as well as their family members. Through the nf clinic network and the annual nf forum, the foundation brings researchers…
Highest reported compensation
2024 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| PRESIDENT Officer, 37.50 hrs/week | $404,743 | $0 | $63,609 | $468,352 |
| CHIEF MEDICAL OFFICER Officer, 37.50 hrs/week | $343,266 | $0 | $61,369 | $404,635 |
| CHIEF MARKETING OFFICER Officer, 37.50 hrs/week | $246,075 | $0 | $30,844 | $276,919 |
| CHIEF GROWTH OFFICER Officer, 37.50 hrs/week | $258,750 | $0 | $12,578 | $271,328 |
| DIRECTOR, PRECLINICAL INITIATIVES Highest compensated employee, 37.50 hrs/week | $183,952 | $0 | $54,103 | $238,055 |
| VICE PRESIDENT OF DEV. Highest compensated employee, 37.50 hrs/week | $172,066 | $0 | $43,386 | $215,452 |
| SR. VP, FINANCE AND OPERATIONS Officer, 37.50 hrs/week | $194,226 | $0 | $9,091 | $203,317 |
| DIRECTOR, HUMAN RESOURCES Highest compensated employee, 37.50 hrs/week | $160,108 | $0 | $38,274 | $198,382 |
19 people received more than $100,000 in reportable compensation from Children's Tumor Foundation (Part VII, line 2). Compensation of current officers, directors and key employees totaled $1.6M (Part IX, line 5).
6 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2024 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b25 · 25 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bYes
- Employees Part I, line 555
- Volunteers Part I, line 61,000
Largest outside contractors
2024 · Form 990, Part VII, Section B · businesses onlyIndividuals listed as contractors are left out. 3 contractors were paid more than $100,000 in all.
Private foundation grants it received
95 private foundations reported grants to Children's Tumor Foundation totaling $1.6M on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from Children's Tumor Foundation's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Children's Tumor Foundation, you can publish a response that is linked from this page.
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Of every $100 Children's Tumor Foundation spent in 2024, $83.77 went to programs. The full breakdown, from its IRS Form 990:
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Similar-sized charities in this cause
- International Society for Pharmacoeconomics Outcomes ResearchLawrenceville, NJ · revenue $20M · programs 84.0% · 2024
- Rheumatology Research FoundationAtlanta, GA · revenue $20M · programs 84.6% · FY2025
- Winifred Masterson Burke Medical ResearchWhite Plains, NY · revenue $20M · programs 64.4% · 2024
- Arbor Research Collaborative for HealthAnn Arbor, MI · revenue $20M · programs 74.0% · 2024
- Puerto Rico Community Network for Clinical Services Research and Health AdSan Juan, PR · revenue $18M · programs 80.8% · 2024
All medical research charities · Largest charities in New York
Questions people ask
How much of Children's Tumor Foundation's spending goes to programs?
In calendar year 2024, Children's Tumor Foundation reported that 83.8% of its $19.0 million in expenses went to program services, 8.0% to management and general and 8.2% to fundraising (Form 990, Part IX).
How much does Children's Tumor Foundation pay its top executive?
The largest total compensation Children's Tumor Foundation reported for one person in calendar year 2024 was $468,352, for the role of PRESIDENT (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does Children's Tumor Foundation get its money?
Of $19.7 million in revenue in calendar year 2024, 95.7% came from contributions and grants (including 0.0% from government grants) and 0.1% from program service revenue (Form 990, Part VIII).
Is Children's Tumor Foundation a registered charity?
The IRS lists EIN 13-2298956 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2024: Form 990 for calendar year 2024, object 202503029349302415 · read the filing · XML
- 2023: Form 990 for calendar year 2023, object 202413209349326726 · read the filing
- 2022: Form 990 for calendar year 2022, object 202333149349302703 · read the filing
- 2021: Form 990 for calendar year 2021, object 202223199349331417 · read the filing
- 2020: Form 990 for calendar year 2020, object 202103029349301015 · read the filing
- 2019: Form 990 for calendar year 2019, object 202042399349300529 · read the filing
All filings for EIN 13-2298956: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.