National Bleeding Disorders Foundation
National Bleeding Disorders Foundation reported $16.6 million in revenue and $19.6 million in expenses for calendar year 2024. Of every $100 it spent, $74.41 went to program services, $18.68 to management and general costs and $6.91 to fundraising. Its largest source of revenue was contributions and grants: 82.6% of the total. The highest compensation it reported for one person was $415,294 (CHIEF SCIENTIFIC OFFICER). 28 people received more than $100,000 in reportable compensation. Revenue fell 39% between 2019 and 2024. Source: Form 990, 2024.
Where $100 of spending went
Calendar year 2024 · Form 990, Part IX, line 25 · total expenses $20MFor context, the median across 2,433 covered unclassified charities: $88.27 programs, $11.68 management, $0.05 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2024 · Form 990, Part VIII · total revenue $17M- Contributions & grants (non-government)$78.98 $13M
- Government grants$3.29 $548K
- Program service revenue$7.26 $1.2M
- Investment income$10.47 $1.7M
Other revenue was negative: −$75,479. The bar shows the positive sources only.
The 990 scorecard · same measures for every charity, no grades
| Measure | 2024 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 74.4% | 86.7% |
| Management & general Part IX 25(C) ÷ 25(A) | 18.7% | 11.5% |
| Fundraising Part IX 25(D) ÷ 25(A) | 6.9% | 0.0% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.10 | $0.01 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 82.6% | 29.9% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 3.3% | 3.8% |
| Program service revenue share Part VIII 2g ÷ 12 | 7.3% | 58.9% |
| Highest reported compensation Part VII-A, columns D–F | $415,294 | $301,601 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 2.11% | 1.38% |
| People paid over $100,000 Part VII, line 2 | 28 | 6 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 16.7 | 6.8 |
| Independent voting board members Part VI 1a–1b | 13 of 13 | 100.0% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2024 · Form 990, Part III · the three largest programs by expenseHealth education and trainingnbdf expanded its health coaching project, own your path, for men and women with hemophilia or von willebrand disease (vwd). The program aims to improve treatment adherence. Nbdf also continues to distribute all of its educational publications for those living with inheritable Bleeding Disorders, from masac for you new publications on diagnosis, treatment and care for women and girls, to nbdf's new thrive campaign showcasing 6 easy steps to living healthy with a bleeding disorder. In 2024, nbdf distributed 30,777 publications.the primary goals of the National…
Community services nbdf's public policy department works to advocate for policies that promote health, safety, rights and access to care for people with inheritable blood disorders by educating federal and state lawmakers, other government agencies and officials, as well as industry and allied health education and training organizations. Two key areas of focus are payer and consumer education, and self-advocacy.the public policy department provides training, tools, and hands-on support to consumers to help them become effective self-advocates.through the state-based advocacy program, nbdf…
Researchnational research blueprint (nrb): a communitywide project to redefine the way research in the Bleeding Disorders community was launched in 2019. The goals of the national research blueprint (nrb) are: (1) develop a multidisciplinary integrated research enterprise centered in a network of both specialty and community-based care; driven by patients with inherited Bleeding Disorders (pwibd) as lived experience experts (lees); embedded in the principles of social justice; to steadily advance the standard of care for pwibds through impactful basic, translational, clinical, health…
Highest reported compensation
2024 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| CHIEF SCIENTIFIC OFFICER Key employee, 40.00 hrs/week | $398,637 | $0 | $16,657 | $415,294 |
| PRESIDENT & CEO Officer, 40.00 hrs/week | $333,391 | $0 | $16,974 | $350,365 |
| MANAGING DIRECTOR Highest compensated employee, 40.00 hrs/week | $306,003 | $0 | $42,675 | $348,678 |
| CHIEF BUSINESS OFFICER Officer, 40.00 hrs/week | $214,515 | $0 | $76,019 | $290,534 |
| CHIEF OPERATING OFFICER Key employee, 40.00 hrs/week | $219,819 | $0 | $56,471 | $276,290 |
| VENTURE PRINCIPAL Highest compensated employee, 40.00 hrs/week | $175,948 | $0 | $70,987 | $246,935 |
| S.V.P. OF PUBLIC POLICY Highest compensated employee, 40.00 hrs/week | $175,228 | $0 | $61,297 | $236,525 |
| ACCESS & STRATEGIC INNOVATION Highest compensated employee, 40.00 hrs/week | $178,161 | $0 | $46,804 | $224,965 |
28 people received more than $100,000 in reportable compensation from National Bleeding Disorders Foundation (Part VII, line 2). Compensation of current officers, directors and key employees totaled $1.5M (Part IX, line 5).
6 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2024 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b13 · 13 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bYes
- Employees Part I, line 599
- Volunteers Part I, line 61,078
Largest outside contractors
2024 · Form 990, Part VII, Section B · businesses only| MANIFEST LLC Production/hemaware publication | $481,417 |
| IMPACT EDUCATION LLC Consultant for medical education | $308,014 |
| CCR SOLUTIONS INC Audiovisual services | $227,500 |
| ARTEMIS POLICY GROUP LLC Strategic advisory services | $187,500 |
| ETK COMMUNICATIONS Leadership solution services | $137,738 |
Individuals listed as contractors are left out. 7 contractors were paid more than $100,000 in all.
Private foundation grants it received
3 private foundations reported grants to National Bleeding Disorders Foundation totaling $7,250 on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from National Bleeding Disorders Foundation's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for National Bleeding Disorders Foundation, you can publish a response that is linked from this page.
Share or embed this breakdown
Of every $100 National Bleeding Disorders Foundation spent in 2024, $74.41 went to programs. The full breakdown, from its IRS Form 990:
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Similar-sized charities in this cause
- Ludwig Von Mises Institute for Austrian EconomicsAuburn, AL · revenue $17M · programs 92.2% · 2024
- Edlavitch Jewish Community Center of Washington DCWashington, DC · revenue $17M · programs 86.6% · FY2025
- Brook Lane Behavioral ServicesHagerstown, MD · revenue $17M · programs 91.3% · FY2025
- Blue Ridge Health CenterArrington, VA · revenue $17M · programs 79.3% · 2024
- National Association of Black AccountantsGreenbelt, MD · revenue $17M · programs 77.5% · 2024
Questions people ask
How much of National Bleeding Disorders Foundation's spending goes to programs?
In calendar year 2024, National Bleeding Disorders Foundation reported that 74.4% of its $19.6 million in expenses went to program services, 18.7% to management and general and 6.9% to fundraising (Form 990, Part IX).
How much does National Bleeding Disorders Foundation pay its top executive?
The largest total compensation National Bleeding Disorders Foundation reported for one person in calendar year 2024 was $415,294, for the role of CHIEF SCIENTIFIC OFFICER (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does National Bleeding Disorders Foundation get its money?
Of $16.6 million in revenue in calendar year 2024, 82.6% came from contributions and grants (including 3.3% from government grants) and 7.3% from program service revenue (Form 990, Part VIII).
Is National Bleeding Disorders Foundation a registered charity?
The IRS lists EIN 13-5641857 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2024: Form 990 for calendar year 2024, object 202502799349301245 · read the filing · XML
- 2023: Form 990 for calendar year 2023, object 202402849349301360 · read the filing
- 2022: Form 990 for calendar year 2022, object 202302869349300135 · read the filing
- 2021: Form 990 for calendar year 2021, object 202212709349301021 · read the filing
- 2020: Form 990 for calendar year 2020, object 202103129349301475 · read the filing
- 2019: Form 990 for calendar year 2019, object 202002949349300605 · read the filing
All filings for EIN 13-5641857: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.