Mary M Gooley Hemophilia Center
Mary M Gooley Hemophilia Center reported $28.7 million in revenue and $21.5 million in expenses for calendar year 2024. Of every $100 it spent, $96.94 went to program services, $2.66 to management and general costs and $0.40 to fundraising. Its largest source of revenue was program service revenue such as fees, sales and contracts: 94.2% of the total. The highest compensation it reported for one person was $228,416 (PRESIDENT & CEO). 4 people received more than $100,000 in reportable compensation. Revenue rose 35% between 2019 and 2024. Source: Form 990, 2024.
Where $100 of spending went
Calendar year 2024 · Form 990, Part IX, line 25 · total expenses $22MFor context, the median across 2,433 covered unclassified charities: $88.27 programs, $11.68 management, $0.05 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2024 · Form 990, Part VIII · total revenue $29MThe 990 scorecard · same measures for every charity, no grades
| Measure | 2024 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 96.9% | 86.7% |
| Management & general Part IX 25(C) ÷ 25(A) | 2.7% | 11.5% |
| Fundraising Part IX 25(D) ÷ 25(A) | 0.4% | 0.0% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | Not reported | $0.01 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 0.5% | 29.9% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.0% | 3.8% |
| Program service revenue share Part VIII 2g ÷ 12 | 94.2% | 58.9% |
| Highest reported compensation Part VII-A, columns D–F | $228,416 | $301,601 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 1.06% | 1.38% |
| People paid over $100,000 Part VII, line 2 | 4 | 6 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 18.2 | 6.8 |
| Independent voting board members Part VI 1a–1b | 7 of 7 | 100.0% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2024 · Form 990, Part III · the three largest programs by expenseThe center has approximately 366 bleeding disorder patients on its active caseload. In 2024, 231 unique patients with hemophilia, von willebrand disease and other rare clotting deficiencies were evaluated and treated. 66 patients with moderate and severe hemophilia attend specialized comprehensive care clinics at least once each year, receiving consultation from an onsite hematologist, nurse coordinator, social worker, physical therapist, orthopedic surgeon and dentist. The center has an on-site specialty pharmacy that provides clotting factor to 52 hemophilia patients via our home infusion…
The center provides specialized evaluation and care for patients with hereditary hemochromatosis and iron overload. Typically, patients with these conditions receive regular therapeutic phlebotomies to diminish excess iron stored in their bodies, diminishing risk of permanent organ damage. The center serves approximately 213 hemochromatosis/iod patients
The center has been actively involved in research and clinical trials in an effort to cultivate advances in hemophilia, von willebrand disease and hemochromatosis. In 2024, the center participated in 2 open research studies addressing a wide range of clinical areas and outcomes. In addition, the center works closely with the center for disease control (cdc) and the american thrombosis and hemostasis network (athn) registries, collecting data as part of a national effort to better understand and care for rare bleeding disorders
Highest reported compensation
2024 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| PRESIDENT & CEO Officer, 40.00 hrs/week | $213,886 | $0 | $14,530 | $228,416 |
| CFO Officer, 40.00 hrs/week | $174,803 | $0 | $21,065 | $195,868 |
| VP OF CLINICAL SERVICES Highest compensated employee, 40.00 hrs/week | $146,970 | $0 | $24,556 | $171,526 |
| NURSE PRACTITIONER Highest compensated employee, 40.00 hrs/week | $132,691 | $0 | $1,613 | $134,304 |
| FORMER CHAIRPERSON Director/trustee, 1.00 hrs/week | $1,000 | $0 | $0 | $1,000 |
4 people received more than $100,000 in reportable compensation from Mary M Gooley Hemophilia Center (Part VII, line 2). Compensation of current officers, directors and key employees totaled $657K (Part IX, line 5).
6 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2024 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b7 · 7 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bNo
- Employees Part I, line 510
- Volunteers Part I, line 614
Largest outside contractors
2024 · Form 990, Part VII, Section B · businesses only| ROCHESTER GENERAL HOSPITAL DEPARTMENT OF Contracted hematologists | $306,324 |
Individuals listed as contractors are left out. 1 contractors were paid more than $100,000 in all.
Private foundation grants it received
2 private foundations reported grants to Mary M Gooley Hemophilia Center totaling $1,023 on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from Mary M Gooley Hemophilia Center's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Mary M Gooley Hemophilia Center, you can publish a response that is linked from this page.
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Of every $100 Mary M Gooley Hemophilia Center spent in 2024, $96.94 went to programs. The full breakdown, from its IRS Form 990:
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Questions people ask
How much of Mary M Gooley Hemophilia Center's spending goes to programs?
In calendar year 2024, Mary M Gooley Hemophilia Center reported that 96.9% of its $21.5 million in expenses went to program services, 2.7% to management and general and 0.4% to fundraising (Form 990, Part IX).
How much does Mary M Gooley Hemophilia Center pay its top executive?
The largest total compensation Mary M Gooley Hemophilia Center reported for one person in calendar year 2024 was $228,416, for the role of PRESIDENT & CEO (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does Mary M Gooley Hemophilia Center get its money?
Of $28.7 million in revenue in calendar year 2024, 0.5% came from contributions and grants and 94.2% from program service revenue (Form 990, Part VIII).
Is Mary M Gooley Hemophilia Center a registered charity?
The IRS lists EIN 16-0836536 as a 501(c)(3) organization (publicly supported organization (509(a)(2))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2024: Form 990 for calendar year 2024, object 202542949349301804 · read the filing · XML
- 2023: Form 990 for calendar year 2023, object 202402719349301625 · read the filing
- 2022: Form 990 for calendar year 2022, object 202322159349300412 · read the filing
- 2021: Form 990 for calendar year 2021, object 202232089349301508 · read the filing
- 2020: Form 990 for calendar year 2020, object 202142709349300119 · read the filing
- 2019: Form 990 for calendar year 2019, object 202022869349301642 · read the filing
All filings for EIN 16-0836536: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.