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The Hemophilia Alliance Group Purchasing Organization
Also known as The Hemophilia Alliance
The Hemophilia Alliance Group Purchasing Organization reported $10.9 million in revenue and $8.8 million in expenses for calendar year 2024. Of every $100 it spent, $92.16 went to program services, $7.84 to management and general costs and $0.00 to fundraising. Its largest source of revenue was program service revenue such as fees, sales and contracts: 90.2% of the total. The highest compensation it reported for one person was $447,323 (PRESIDENT/CEO). 9 people received more than $100,000 in reportable compensation. Revenue rose 81% between 2019 and 2024. Source: Form 990, 2024.
Where $100 of spending went
Calendar year 2024 · Form 990, Part IX, line 25 · total expenses $8.8MFor context, the median across 314 covered diseases, disorders & medical disciplines charities: $88.73 programs, $10.89 management, $0.38 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2024 · Form 990, Part VIII · total revenue $11MThe 990 scorecard · same measures for every charity, no grades
| Measure | 2024 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 92.2% | 86.7% |
| Management & general Part IX 25(C) ÷ 25(A) | 7.8% | 10.6% |
| Fundraising Part IX 25(D) ÷ 25(A) | 0.0% | 0.4% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.00 | $0.03 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 3.5% | 24.7% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.0% | 0.6% |
| Program service revenue share Part VIII 2g ÷ 12 | 90.2% | 59.5% |
| Highest reported compensation Part VII-A, columns D–F | $447,323 | $391,657 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 5.07% | 1.45% |
| People paid over $100,000 Part VII, line 2 | 9 | 10 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 17.8 | 7.6 |
| Independent voting board members Part VI 1a–1b | 15 of 15 | 100.0% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2024 · Form 990, Part III · the three largest programs by expenseTo facilitate purchasing terms and favorable pricing for members to obtain blood clotting factor and other products used to treat individuals with hemophilia or related bleeding disorders. Counseling centers on complying with state & federal law and grant requirements, aiding in the production of educational pieces, promoting the value of the comprehensive care model to policy makers, patients and third-party payers
Highest reported compensation
2024 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| PRESIDENT/CEO Officer, 40.0 hrs/week | $400,000 | $0 | $47,323 | $447,323 |
| FORMER PRESIDENT/CEO Former, 40.0 hrs/week | $271,000 | $0 | $27,100 | $298,100 |
| SVP MEMBER & COMM. RELATIONS Officer, 40.0 hrs/week | $233,000 | $0 | $62,492 | $295,492 |
| SVP MARKETING & OPERATIONS Officer, 40.0 hrs/week | $250,843 | $0 | $21,029 | $271,872 |
| DIR, MEMBER & COMM. RELATIONS Highest compensated employee, 40.0 hrs/week | $185,269 | $0 | $19,546 | $204,815 |
| DIR, MEMBER & COMM. RELATIONS Highest compensated employee, 40.0 hrs/week | $181,843 | $0 | $19,155 | $200,998 |
| Dir - Member & Comm. Relations Highest compensated employee, 40.0 hrs/week | $171,889 | $0 | $26,084 | $197,973 |
| Dir - Member & Comm. Relations Highest compensated employee, 40.0 hrs/week | $178,272 | $0 | $18,801 | $197,073 |
9 people received more than $100,000 in reportable compensation from The Hemophilia Alliance Group Purchasing Organization (Part VII, line 2). Compensation of current officers, directors and key employees totaled $1.3M (Part IX, line 5).
6 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2024 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b15 · 15 independent
- Audited financial statements Part XII 2bNo
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13No
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bNo
- Employees Part I, line 513
- Volunteers Part I, line 615
Correct a figure or respond
Every number above is copied from The Hemophilia Alliance Group Purchasing Organization's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for The Hemophilia Alliance Group Purchasing Organization, you can publish a response that is linked from this page.
Share or embed this breakdown
Of every $100 The Hemophilia Alliance Group Purchasing Organization spent in 2024, $92.16 went to programs. The full breakdown, from its IRS Form 990:
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Questions people ask
How much of The Hemophilia Alliance Group Purchasing Organization's spending goes to programs?
In calendar year 2024, The Hemophilia Alliance Group Purchasing Organization reported that 92.2% of its $8.8 million in expenses went to program services, 7.8% to management and general and 0.0% to fundraising (Form 990, Part IX).
How much does The Hemophilia Alliance Group Purchasing Organization pay its top executive?
The largest total compensation The Hemophilia Alliance Group Purchasing Organization reported for one person in calendar year 2024 was $447,323, for the role of PRESIDENT/CEO (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does The Hemophilia Alliance Group Purchasing Organization get its money?
Of $10.9 million in revenue in calendar year 2024, 3.5% came from contributions and grants and 90.2% from program service revenue (Form 990, Part VIII).
Is The Hemophilia Alliance Group Purchasing Organization a registered charity?
The IRS lists EIN 20-2529619 as a 501(c)(3) organization (publicly supported organization (509(a)(2))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2024: Form 990 for calendar year 2024, object 202503219349312050 · read the filing · XML
- 2023: Form 990 for calendar year 2023, object 202443199349307089 · read the filing
- 2022: Form 990 for calendar year 2022, object 202303199349313450 · read the filing
- 2021: Form 990 for calendar year 2021, object 202203189349313680 · read the filing
- 2020: Form 990 for calendar year 2020, object 202123169349303817 · read the filing
- 2019: Form 990 for calendar year 2019, object 202042899349301909 · read the filing
All filings for EIN 20-2529619: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.