The Center for Cc&D of Inherited Blood Disorders
The Center for Cc&D of Inherited Blood Disorders reported $33.6 million in revenue and $19.3 million in expenses for the fiscal year ending September 30, 2025. Of every $100 it spent, $87.46 went to program services, $12.54 to management and general costs and $0.00 to fundraising. Its largest source of revenue was program service revenue such as fees, sales and contracts: 18.9% of the total. Government grants made up 6.5%. The highest compensation it reported for one person was $457,302 (CHIEF EXECUTIVE OFFICER & TREASURER). 10 people received more than $100,000 in reportable compensation. Revenue fell 51% between FY2020 and FY2025. Source: Form 990, FY2025.
Where $100 of spending went
The fiscal year ending September 30, 2025 · Form 990, Part IX, line 25 · total expenses $19MFor context, the median across 5,634 covered health care charities: $86.19 programs, $13.81 management, $0.00 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
The fiscal year ending September 30, 2025 · Form 990, Part VIII · total revenue $34MThe 990 scorecard · same measures for every charity, no grades
| Measure | FY2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 87.5% | 85.6% |
| Management & general Part IX 25(C) ÷ 25(A) | 12.5% | 13.7% |
| Fundraising Part IX 25(D) ÷ 25(A) | 0.0% | 0.0% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.00 | $0.00 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 6.5% | 1.3% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 6.5% | 0.1% |
| Program service revenue share Part VIII 2g ÷ 12 | 18.9% | 93.7% |
| Highest reported compensation Part VII-A, columns D–F | $457,302 | $975,831 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 2.37% | 1.34% |
| People paid over $100,000 Part VII, line 2 | 10 | 27 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 40.6 | 6.6 |
| Independent voting board members Part VI 1a–1b | 8 of 8 | 88.9% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
FY2025 · Form 990, Part III · the three largest programs by expenseThe center for comprehensive care and diagnostics of Inherited Blood Disorders (cibd) is a community based clinic that provides comprehensive care for children and adults with rare, chronic Inherited Blood Disorders utilizing the comprehensive care model. As a safety net clinic, cibd provides increased access to subspeciality care through a multidisciplinary team approach. Through pharmacy services and innovative health information technology, cibd is able to educate patients and families as well as monitor and drive down cost of care through the 340b program
Highest reported compensation
FY2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| CHIEF EXECUTIVE OFFICER & TREASURER Officer, 40.0 hrs/week | $405,637 | $0 | $51,665 | $457,302 |
| PHYSICIAN Highest compensated employee, 32.0 hrs/week | $310,946 | $0 | $24,499 | $335,445 |
| CHIEF FINANCIAL OFFICER Officer, 40.0 hrs/week | $270,893 | $0 | $41,131 | $312,024 |
| PHYSICIAN Highest compensated employee, 32.0 hrs/week | $233,375 | $0 | $30,178 | $263,553 |
| PHYSICIAN Highest compensated employee, 40.0 hrs/week | $220,594 | $0 | $28,808 | $249,402 |
| HUMAN RESOURCES DIRECTOR Highest compensated employee, 40.0 hrs/week | $208,697 | $0 | $21,833 | $230,530 |
| DIRECTOR OF CLINIC Highest compensated employee, 40.0 hrs/week | $204,268 | $0 | $21,007 | $225,275 |
| PHARMACY MANAGER Key employee, 40.0 hrs/week | $200,308 | $0 | $20,364 | $220,672 |
10 people received more than $100,000 in reportable compensation from The Center for Cc&D of Inherited Blood Disorders (Part VII, line 2). Compensation of current officers, directors and key employees totaled $1.3M (Part IX, line 5).
6 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
FY2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b8 · 8 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4No
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bNo
- Employees Part I, line 568
- Volunteers Part I, line 69
Largest outside contractors
FY2025 · Form 990, Part VII, Section B · businesses only| CHILDREN'S HOSPITAL ORANGE COUNTY Laboratory services | $1,953,749 |
| SICKLE CELL FOUNDATION OF SOUTHERN CALIFORNIA Contractual services | $707,652 |
| OCHIN INC Emr conversion | $450,473 |
| RED CHIP ENTERPRISES Commercial insurance biller | $414,475 |
| PEDIATRIC SUBSPECIALTIES Provider services | $275,456 |
Individuals listed as contractors are left out. 8 contractors were paid more than $100,000 in all.
Correct a figure or respond
Every number above is copied from The Center for Cc&D of Inherited Blood Disorders's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for The Center for Cc&D of Inherited Blood Disorders, you can publish a response that is linked from this page.
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Of every $100 The Center for Cc&D of Inherited Blood Disorders spent in FY2025, $87.46 went to programs. The full breakdown, from its IRS Form 990:
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Questions people ask
How much of The Center for Cc&D of Inherited Blood Disorders's spending goes to programs?
In the fiscal year ending September 30, 2025, The Center for Cc&D of Inherited Blood Disorders reported that 87.5% of its $19.3 million in expenses went to program services, 12.5% to management and general and 0.0% to fundraising (Form 990, Part IX).
How much does The Center for Cc&D of Inherited Blood Disorders pay its top executive?
The largest total compensation The Center for Cc&D of Inherited Blood Disorders reported for one person in the fiscal year ending September 30, 2025 was $457,302, for the role of CHIEF EXECUTIVE OFFICER & TREASURER (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does The Center for Cc&D of Inherited Blood Disorders get its money?
Of $33.6 million in revenue in the fiscal year ending September 30, 2025, 6.5% came from contributions and grants (including 6.5% from government grants) and 18.9% from program service revenue (Form 990, Part VIII).
Is The Center for Cc&D of Inherited Blood Disorders a registered charity?
The IRS lists EIN 27-0179192 as a 501(c)(3) organization (publicly supported organization (509(a)(2))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- FY2025: Form 990 for the fiscal year ending September 30, 2025, object 202642249349301824 · read the filing
- FY2024: Form 990 for the fiscal year ending September 30, 2024, object 202502129349300925 · read the filing
- FY2023: Form 990 for the fiscal year ending September 30, 2023, object 202402279349300035 · read the filing
- FY2022: Form 990 for the fiscal year ending September 30, 2022, object 202322279349300812 · read the filing
- FY2021: Form 990 for the fiscal year ending September 30, 2021, object 202230769349300933 · read the filing
- FY2020: Form 990 for the fiscal year ending September 30, 2020, object 202112249349301946 · read the filing
All filings for EIN 27-0179192: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.