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Foundation for Sarcoidosis Research
Foundation for Sarcoidosis Research reported $4.7 million in revenue and $3.8 million in expenses for calendar year 2025. Of every $100 it spent, $75.19 went to program services, $17.89 to management and general costs and $6.92 to fundraising. Its largest source of revenue was contributions and grants: 85.5% of the total. The highest compensation it reported for one person was $325,094 (PRESIDENT & CEO). Revenue rose 115% between 2019 and 2025. Source: Form 990, 2025.
Where $100 of spending went
Calendar year 2025 · Form 990, Part IX, line 25 · total expenses $3.8MFor context, the median across 1,001 covered philanthropy, voluntarism & grantmaking charities: $91.65 programs, $6.50 management, $1.85 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2025 · Form 990, Part VIII · total revenue $4.7M- Contributions & grants (non-government)$83.02 $4.0M
- Program service revenue$2.03 $97,267
- Investment income$14.95 $718K
Other revenue was negative: −$138K. The bar shows the positive sources only.
The 990 scorecard · same measures for every charity, no grades
| Measure | 2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 75.2% | 90.2% |
| Management & general Part IX 25(C) ÷ 25(A) | 17.9% | 6.4% |
| Fundraising Part IX 25(D) ÷ 25(A) | 6.9% | 1.8% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.07 | $0.02 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 85.5% | 79.9% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.0% | 0.0% |
| Program service revenue share Part VIII 2g ÷ 12 | 2.1% | 0.0% |
| Highest reported compensation Part VII-A, columns D–F | $325,094 | $325,675 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 8.53% | 1.56% |
| People paid over $100,000 Part VII, line 2 | 0 | 3 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 55.7 | 56.6 |
| Independent voting board members Part VI 1a–1b | 14 of 14 | 100.0% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2025 · Form 990, Part III · the three largest programs by expenseFsr research funding - the foundation for Sarcoidosis Research provided $875,600 in Sarcoidosis Research funding in 2025. Fsr provided three fellowships in the amount of $150,000 each, two cardiac grants in the amount of $100,000 each, two pilot grants in the amounts of $100,000 and $99,600, and one fsr/american heart association partner grant in the amount of $26,000. Fsr also hosts a patient registry with nearly 7,500 participants from 68 countries and provides ongoing support to academia and industry in ensuring all clinical trials and research are patient centered
Fsr global sarcoidosis clinic alliance (fsr-gsca) clinical support - comprised of 46 member institutions, the fsr-gsca is a powerful network of institutions that support patients, caregivers, and clinicians, through educational and support programming. The fsr-gsca reaches over 4000 clinicians with clinical education programming from over 40 countries. Through this program, fsr coordinates continuing education educational programs for clinicians including the fsr clinical education and engagement series, the fsr journal club, and the fsr case conference program, which provide insights that…
Fsr patient support and education - fsr provides extensive support to patient and caregivers impacted by sarcoidosis through information & referral services, assistance to financial resources, 1:1 peer to peer patient support program (patient navigators), national virtual support group, and local support groups affiliated with the fsr global sarcoidosis clinic alliance. Fsr hosts webinars, town halls, podcasts, virtual summits, and in-person educational events to provide patients and family members with education from world-renowned sarcoidosis experts. Fsr works with the nih, fda, and dod to…
Highest reported compensation
2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| PRESIDENT & CEO Officer, 40.00 hrs/week | $297,500 | $0 | $27,594 | $325,094 |
| CHIEF OF STAFF AND STRATEGY Officer, 40.00 hrs/week | $248,750 | $0 | $23,963 | $272,713 |
| VP OF RESEARCH Highest compensated employee, 40.00 hrs/week | $150,067 | $0 | $12,631 | $162,698 |
| DIRECTOR OF OPERATIONS Highest compensated employee, 40.00 hrs/week | $103,220 | $0 | $4,581 | $107,801 |
0 people received more than $100,000 in reportable compensation from Foundation for Sarcoidosis Research (Part VII, line 2). Compensation of current officers, directors and key employees totaled $598K (Part IX, line 5).
7 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b14 · 14 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4No
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bYes
- Employees Part I, line 520
- Volunteers Part I, line 6125
Private foundation grants it received
12 private foundations reported grants to Foundation for Sarcoidosis Research totaling $10M on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from Foundation for Sarcoidosis Research's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Foundation for Sarcoidosis Research, you can publish a response that is linked from this page.
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Of every $100 Foundation for Sarcoidosis Research spent in 2025, $75.19 went to programs. The full breakdown, from its IRS Form 990:
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Questions people ask
How much of Foundation for Sarcoidosis Research's spending goes to programs?
In calendar year 2025, Foundation for Sarcoidosis Research reported that 75.2% of its $3.8 million in expenses went to program services, 17.9% to management and general and 6.9% to fundraising (Form 990, Part IX).
How much does Foundation for Sarcoidosis Research pay its top executive?
The largest total compensation Foundation for Sarcoidosis Research reported for one person in calendar year 2025 was $325,094, for the role of PRESIDENT & CEO (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does Foundation for Sarcoidosis Research get its money?
Of $4.7 million in revenue in calendar year 2025, 85.5% came from contributions and grants and 2.1% from program service revenue (Form 990, Part VIII).
Is Foundation for Sarcoidosis Research a registered charity?
The IRS lists EIN 36-4378232 as a 501(c)(3) organization (publicly supported organization (509(a)(2))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024, 2025. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2025: Form 990 for calendar year 2025, object 202642479349300444 · read the filing
- 2024: Form 990 for calendar year 2024, object 202503189349308710 · read the filing
- 2023: Form 990 for calendar year 2023, object 202403109349302150 · read the filing
- 2022: Form 990 for calendar year 2022, object 202313149349303536 · read the filing
- 2021: Form 990 for calendar year 2021, object 202213159349302076 · read the filing
- 2020: Form 990 for calendar year 2020, object 202133169349302033 · read the filing
- 2019: Form 990 for calendar year 2019, object 202003189349308020 · read the filing
All filings for EIN 36-4378232: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.