National Ataxia Foundation
National Ataxia Foundation reported $13.0 million in revenue and $6.1 million in expenses for calendar year 2025. Of every $100 it spent, $78.72 went to program services, $11.32 to management and general costs and $9.96 to fundraising. Its largest source of revenue was contributions and grants: 84.2% of the total. The highest compensation it reported for one person was $221,747 (Chief Executive Officer). 5 people received more than $100,000 in reportable compensation. Revenue rose 324% between 2019 and 2025. Source: Form 990, 2025.
Where $100 of spending went
Calendar year 2025 · Form 990, Part IX, line 25 · total expenses $6.1MFor context, the median across 2,433 covered unclassified charities: $88.27 programs, $11.68 management, $0.05 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2025 · Form 990, Part VIII · total revenue $13M- Contributions & grants (non-government)$84.10 $11M
- Program service revenue$13.88 $1.8M
- Investment income$2.02 $263K
Other revenue was negative: −$19,024. The bar shows the positive sources only.
The 990 scorecard · same measures for every charity, no grades
| Measure | 2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 78.7% | 86.7% |
| Management & general Part IX 25(C) ÷ 25(A) | 11.3% | 11.5% |
| Fundraising Part IX 25(D) ÷ 25(A) | 10.0% | 0.0% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.06 | $0.01 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 84.2% | 29.9% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.0% | 3.8% |
| Program service revenue share Part VIII 2g ÷ 12 | 13.9% | 58.9% |
| Highest reported compensation Part VII-A, columns D–F | $221,747 | $301,601 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 3.62% | 1.38% |
| People paid over $100,000 Part VII, line 2 | 5 | 6 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 22.0 | 6.8 |
| Independent voting board members Part VI 1a–1b | 14 of 14 | 100.0% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2025 · Form 990, Part III · the three largest programs by expenseIncreased awareness about hereditary and sporadic ataxia disorders is promoted through a variety of education programs and materials for ataxia families, researchers, physicians, allied health professionals, government agencies, legislative officials and the general public. The Foundation publishes Generations, an annual newsletter and a monthly e-newsletter devoted to ataxia related articles including the latest research and other information beneficial to individuals with ataxia. The Foundation also offers several webinars throughout the year on current topics relevant to the ataxia…
NAF is committed to funding cutting-edge basic and translational research into hereditary and sporadic ataxia. The goals of NAF's research program are to further elucidate the disease mechanisms of ataxias, bring early-career clinicians and scientists into ataxia research, and help drive the field towards developing treatments and a cure for ataxia. Annual grants are selected through a competitive review process that includes NAF's Medical and Research Advisory Board members and over 80 leading ataxia scientists and clinicians, both domestic and international. Each year NAF awards grants to…
Funding for several of NAF's other key clinical research programs are provided through the NAF Drug Development Collaborative (DDC). The DDC is a pre-competitive pharmaceutical industry consortium with a principal goal of accelerating the development of treatments for ataxia. The Collaborative provides a centralized source for access to resources needed to support research and development of Ataxia therapies. Specific objectives of the Collaborative include natural history and bio sample data collection, development of biomarkers, validation of rating scales, clinical trial design…
Highest reported compensation
2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| Chief Executive Officer Officer, 40.00 hrs/week | $194,042 | $0 | $27,705 | $221,747 |
| VP and Chief Scientific Of Highest compensated employee, 40.00 hrs/week | $209,482 | $0 | $6,838 | $216,320 |
| Vice President Of Developm Highest compensated employee, 40.00 hrs/week | $171,132 | $0 | $0 | $171,132 |
| Vice President Highest compensated employee, 40.00 hrs/week | $126,766 | $0 | $25,845 | $152,611 |
| Regional Development Manager Highest compensated employee, 40.00 hrs/week | $105,785 | $0 | $7,743 | $113,528 |
5 people received more than $100,000 in reportable compensation from National Ataxia Foundation (Part VII, line 2). Compensation of current officers, directors and key employees totaled $222K (Part IX, line 5).
7 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b14 · 14 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4No
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bYes
- Employees Part I, line 523
- Volunteers Part I, line 6350
Private foundation grants it received
21 private foundations reported grants to National Ataxia Foundation totaling $146K on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from National Ataxia Foundation's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for National Ataxia Foundation, you can publish a response that is linked from this page.
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Of every $100 National Ataxia Foundation spent in 2025, $78.72 went to programs. The full breakdown, from its IRS Form 990:
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Questions people ask
How much of National Ataxia Foundation's spending goes to programs?
In calendar year 2025, National Ataxia Foundation reported that 78.7% of its $6.1 million in expenses went to program services, 11.3% to management and general and 10.0% to fundraising (Form 990, Part IX).
How much does National Ataxia Foundation pay its top executive?
The largest total compensation National Ataxia Foundation reported for one person in calendar year 2025 was $221,747, for the role of Chief Executive Officer (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does National Ataxia Foundation get its money?
Of $13.0 million in revenue in calendar year 2025, 84.2% came from contributions and grants and 13.9% from program service revenue (Form 990, Part VIII).
Is National Ataxia Foundation a registered charity?
The IRS lists EIN 41-0832903 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024, 2025. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2025: Form 990 for calendar year 2025, object 202631679349300238 · read the filing · XML
- 2024: Form 990 for calendar year 2024, object 202541569349300924 · read the filing
- 2023: Form 990 for calendar year 2023, object 202431239349301653 · read the filing
- 2022: Form 990 for calendar year 2022, object 202321729349300342 · read the filing
- 2021: Form 990 for calendar year 2021, object 202211589349300211 · read the filing
- 2020: Form 990 for calendar year 2020, object 202131969349300608 · read the filing
- 2019: Form 990 for calendar year 2019, object 202002869349301755 · read the filing
All filings for EIN 41-0832903: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.