Home › Diseases, disorders & medical disciplines
Lupus Foundation of America
Lupus Foundation of America reported $15.0 million in revenue and $16.7 million in expenses for the fiscal year ending September 30, 2025. Of every $100 it spent, $74.82 went to program services, $8.65 to management and general costs and $16.53 to fundraising. Its largest source of revenue was contributions and grants: 87.8% of the total. Government grants made up 16.1%. The highest compensation it reported for one person was $340,899 (CEO; VP, MARKETING & COMMUNICATIONS). 21 people received more than $100,000 in reportable compensation. Revenue rose 25% between FY2020 and FY2025. Source: Form 990, FY2025.
Where $100 of spending went
The fiscal year ending September 30, 2025 · Form 990, Part IX, line 25 · total expenses $17MFor context, the median across 314 covered diseases, disorders & medical disciplines charities: $88.73 programs, $10.89 management, $0.38 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
The fiscal year ending September 30, 2025 · Form 990, Part VIII · total revenue $15MThe 990 scorecard · same measures for every charity, no grades
| Measure | FY2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 74.8% | 86.7% |
| Management & general Part IX 25(C) ÷ 25(A) | 8.7% | 10.6% |
| Fundraising Part IX 25(D) ÷ 25(A) | 16.5% | 0.4% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.21 | $0.03 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 87.8% | 24.7% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 16.1% | 0.6% |
| Program service revenue share Part VIII 2g ÷ 12 | 10.7% | 59.5% |
| Highest reported compensation Part VII-A, columns D–F | $340,899 | $391,657 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 2.04% | 1.45% |
| People paid over $100,000 Part VII, line 2 | 21 | 10 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 3.4 | 7.6 |
| Independent voting board members Part VI 1a–1b | 19 of 19 | 100.0% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
FY2025 · Form 990, Part III · the three largest programs by expensePublic information and education:the foundation strengthened its role as the leading source of lupus information. The lupus.org website reached more than 9.8 million annual views, supported by homepage optimization improvements and the integration of the digital know lupus quiz to enhance engagement during lupus awareness month (lam) and year-round. Social media following grew to more than 450,000 combined followers across platforms, supported by targeted campaigns, including "spotlight series" initiatives highlighting disparities and the unique impact of lupus across populations.lupus…
Patient education and support:the foundation's national resource center on lupus (nrcl) remained central to patient education, reaching nearly 2 million users and generating 3.3 million sessions in 2025 with a 65% engagement rate. The foundation updated or created new 24 medically-reviewed english resources and 20 spanish resources, with 88% of materials now available bilingually. New blog content addressed mental health, lupus nephritis, and lifestyle strategies.the foundation hosted 29 lupus & you empowerment conferences, attracting more than 1,500 in-person attendees, 41% of whom were new…
Professional relations and education:the foundation's advocacy efforts delivered historic funding gains. During the national lupus advocacy summit, more than 350 advocates conducted nearly 200 meetings on capitol hill. These efforts contributed to securing $27 million in lupus-specific federal funding for fy2026 the highest ever approved in a single year. Funding allocations included:- $14 million for the cdc's national lupus patient registry- $10 million for the department of defense lupus research program- $3 million for the office of minority health's lupus training and outreach…
Highest reported compensation
FY2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| CEO; VP, MARKETING & COMMUNICATIONS Officer, 37.50 hrs/week | $300,484 | $0 | $40,415 | $340,899 |
| VP, NETWORK DEVELOPMENT Officer, 37.50 hrs/week | $224,500 | $0 | $35,633 | $260,133 |
| VP, ADVOCACY & GOVERNMENT Key employee, 37.50 hrs/week | $212,146 | $0 | $27,369 | $239,515 |
| VP, RESEARCH Key employee, 37.50 hrs/week | $201,167 | $0 | $24,453 | $225,620 |
| REGIONAL DIRECTOR, NE Highest compensated employee, 37.50 hrs/week | $177,774 | $0 | $34,929 | $212,703 |
| SENIOR REGIONAL DIRECTOR Highest compensated employee, 37.50 hrs/week | $190,422 | $0 | $21,051 | $211,473 |
| VICE PRESIDENT, COMMUNICATIONS Key employee, 37.50 hrs/week | $181,534 | $0 | $28,370 | $209,904 |
| SENIOR REGIONAL DIRECTOR Highest compensated employee, 37.50 hrs/week | $175,434 | $0 | $33,867 | $209,301 |
21 people received more than $100,000 in reportable compensation from Lupus Foundation of America (Part VII, line 2). Compensation of current officers, directors and key employees totaled $2.2M (Part IX, line 5).
6 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
FY2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b19 · 19 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18Yes
- Over $10,000 of activity outside the U.S. Part IV 14bNo
- Employees Part I, line 576
- Volunteers Part I, line 61,075
Largest outside contractors
FY2025 · Form 990, Part VII, Section B · businesses only| DAVINCI DIRECT Consulting | $611,679 |
| YOUR PART-TIME CONTROLLER LLC Accounting services | $406,516 |
| INTERACTIVE STRATEGIES INC Website/online related services | $332,137 |
| MEDIA CAUSE Marketing services | $278,000 |
| JW MARRIOT HOTEL WASHINGTON DC Event hosting | $263,111 |
Individuals listed as contractors are left out. 19 contractors were paid more than $100,000 in all.
Private foundation grants it received
54 private foundations reported grants to Lupus Foundation of America totaling $200K on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from Lupus Foundation of America's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Lupus Foundation of America, you can publish a response that is linked from this page.
Share or embed this breakdown
Of every $100 Lupus Foundation of America spent in FY2025, $74.82 went to programs. The full breakdown, from its IRS Form 990:
Embed on your site
Similar-sized charities in this cause
- San Antonio AIDS FoundationSan Antonio, TX · revenue $15M · programs 79.8% · 2024
- LGBT Life CenterNorfolk, VA · revenue $15M · programs 89.1% · FY2025
- Birmingham AIDS OutreachBirmingham, AL · revenue $15M · programs 93.0% · FY2024
- Families of Spinal Muscular AtrophySchaumburg, IL · revenue $15M · programs 77.3% · FY2025
- National Society to Prevent BlindnessChicago, IL · revenue $15M · programs 76.1% · FY2025
All diseases, disorders & medical disciplines charities · Largest charities in District of Columbia
Questions people ask
How much of Lupus Foundation of America's spending goes to programs?
In the fiscal year ending September 30, 2025, Lupus Foundation of America reported that 74.8% of its $16.7 million in expenses went to program services, 8.7% to management and general and 16.5% to fundraising (Form 990, Part IX).
How much does Lupus Foundation of America pay its top executive?
The largest total compensation Lupus Foundation of America reported for one person in the fiscal year ending September 30, 2025 was $340,899, for the role of CEO; VP, MARKETING & COMMUNICATIONS (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does Lupus Foundation of America get its money?
Of $15.0 million in revenue in the fiscal year ending September 30, 2025, 87.8% came from contributions and grants (including 16.1% from government grants) and 10.7% from program service revenue (Form 990, Part VIII).
Is Lupus Foundation of America a registered charity?
The IRS lists EIN 43-1131436 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- FY2025: Form 990 for the fiscal year ending September 30, 2025, object 202601279349303080 · read the filing · XML
- FY2024: Form 990 for the fiscal year ending September 30, 2024, object 202541419349300209 · read the filing
- FY2023: Form 990 for the fiscal year ending September 30, 2023, object 202422139349300242 · read the filing
- FY2022: Form 990 for the fiscal year ending September 30, 2022, object 202342209349300929 · read the filing
- FY2021: Form 990 for the fiscal year ending September 30, 2021, object 202201319349304955 · read the filing
- FY2020: Form 990 for the fiscal year ending September 30, 2020, object 202111069349300201 · read the filing
All filings for EIN 43-1131436: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.