Home › Diseases, disorders & medical disciplines
Epilepsy Foundation of America
Also known as Epilepsy Foundation
Epilepsy Foundation of America reported $16.2 million in revenue and $19.0 million in expenses for the fiscal year ending June 30, 2025. Of every $100 it spent, $76.01 went to program services, $14.99 to management and general costs and $9.00 to fundraising. Its largest source of revenue was contributions and grants: 104.4% of the total. Government grants made up 22.1%. The highest compensation it reported for one person was $481,358 (CHIEF EXECUTIVE OFFICER). 24 people received more than $100,000 in reportable compensation. Revenue fell 43% between FY2020 and FY2025. Source: Form 990, FY2025.
Where $100 of spending went
The fiscal year ending June 30, 2025 · Form 990, Part IX, line 25 · total expenses $19MFor context, the median across 314 covered diseases, disorders & medical disciplines charities: $88.73 programs, $10.89 management, $0.38 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
The fiscal year ending June 30, 2025 · Form 990, Part VIII · total revenue $16M- Contributions & grants (non-government)$76.17 $13M
- Government grants$20.46 $3.6M
- Program service revenue$2.51 $439K
- Investment income$0.86 $151K
Other revenue was negative: −$1.3M. The bar shows the positive sources only.
The 990 scorecard · same measures for every charity, no grades
| Measure | FY2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 76.0% | 86.7% |
| Management & general Part IX 25(C) ÷ 25(A) | 15.0% | 10.6% |
| Fundraising Part IX 25(D) ÷ 25(A) | 9.0% | 0.4% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.10 | $0.03 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 104.4% | 24.7% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 22.1% | 0.6% |
| Program service revenue share Part VIII 2g ÷ 12 | 2.7% | 59.5% |
| Highest reported compensation Part VII-A, columns D–F | $481,358 | $391,657 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 2.54% | 1.45% |
| People paid over $100,000 Part VII, line 2 | 24 | 10 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 11.3 | 7.6 |
| Independent voting board members Part VI 1a–1b | 14 of 14 | 100.0% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
FY2025 · Form 990, Part III · the three largest programs by expenseAdvocacy and services for individuals, families, and communities - designed to ensure that all people living with epilepsy and seizure disorders, and thier families and communities, receive the best possible services and care. The foundation develops nationwide programs available through its network of nearly fifty local epilepsy foundations and can also be found on epilepsy.com. Programs and initiatives focus on engaging parents, children and adults on improving their quality of life. The foundation also has programs dedicated to ending early death from epilepsy and improving overall…
Public health, education, and awareness - provides educational and supporting services that create and promote public awareness surrounding epilepsy. The program utilizes traditional and digital media channels including social media and through the direct mail program which serve the dual purpose of raising funds for the foundation and increasing awareness of the foundation's cause. The foundation educates through engagement with media sources, and partnerships with other non-profits and professional and government organizations. In addition, the foundation established the epilepsy learning…
Research, innovation, and new therapies - accelerates the development of innovative therapies, prevention, and cures for all forms of epilepsies, and seeks to address the gap in the research and commercialization continuum. The main objective is to develop an epilepsy research ecosystem that covers all parts of therapy, from idea to market. The foundation's research initiatives include: innovation programs that test new ideas and follow new research leads and engagement programs that improve communication between people with epilepsy, their families, advocates, researchers, and investors.…
Highest reported compensation
FY2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| CHIEF EXECUTIVE OFFICER Officer, 35.00 hrs/week | $451,255 | $0 | $30,103 | $481,358 |
| CHIEF OUTCOMES OFFICER Officer, 35.00 hrs/week | $259,791 | $0 | $39,944 | $299,735 |
| CHIEF ADVOCACY AND GOVERNMENT RELATIONS OFFICER Officer, 35.00 hrs/week | $225,000 | $0 | $22,755 | $247,755 |
| VP MARKETING AND COMMUNICATIONS Highest compensated employee, 35.00 hrs/week | $178,423 | $0 | $33,745 | $212,168 |
| VP PUBLIC HEALTH OUTCOMES Highest compensated employee, 35.00 hrs/week | $162,248 | $0 | $44,905 | $207,153 |
| VP HUMAN RESOURCES Highest compensated employee, 35.00 hrs/week | $161,710 | $0 | $22,879 | $184,589 |
| CHIEF RESEARCH AND INNOVATION OFFICER Highest compensated employee, 35.00 hrs/week | $165,792 | $0 | $11,605 | $177,397 |
| CHIEF FINANCIAL OFFICER Officer, 35.00 hrs/week | $156,345 | $0 | $16,928 | $173,273 |
24 people received more than $100,000 in reportable compensation from Epilepsy Foundation of America (Part VII, line 2). Compensation of current officers, directors and key employees totaled $1.2M (Part IX, line 5).
6 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
FY2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b14 · 14 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18Yes
- Over $10,000 of activity outside the U.S. Part IV 14bYes
- Employees Part I, line 599
- Volunteers Part I, line 61,000
Largest outside contractors
FY2025 · Form 990, Part VII, Section B · businesses only| THE GENERAL HOSPITAL CORPORATION Consulting services | $388,249 |
| HH ASSOCIATES US INC Fundraising consultant | $381,677 |
| VAULT CONSULTING LLC Consulting services | $261,120 |
| CBS INTERACTIVE Consulting services | $200,000 |
| BENEFACTOR GROUP Consulting services | $176,724 |
Individuals listed as contractors are left out. 11 contractors were paid more than $100,000 in all.
Private foundation grants it received
51 private foundations reported grants to Epilepsy Foundation of America totaling $333K on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from Epilepsy Foundation of America's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Epilepsy Foundation of America, you can publish a response that is linked from this page.
Share or embed this breakdown
Of every $100 Epilepsy Foundation of America spent in FY2025, $76.01 went to programs. The full breakdown, from its IRS Form 990:
Embed on your site
Similar-sized charities in this cause
- Pinnacle Family HealthWest Monroe, LA · revenue $16M · programs 91.6% · 2025
- Kelberman CenterUtica, NY · revenue $16M · programs 83.7% · 2024
- Children's Hospital Pathology FoundationBoston, MA · revenue $16M · programs 88.4% · FY2025
- Upper Room AIDS Ministry Inc. Adult Day Health CARE CenterNew York, NY · revenue $16M · programs 100.0% · FY2025
- Health Emergency Lifeline ProgramsDetroit, MI · revenue $16M · programs 94.9% · FY2025
All diseases, disorders & medical disciplines charities · Largest charities in Maryland
Questions people ask
How much of Epilepsy Foundation of America's spending goes to programs?
In the fiscal year ending June 30, 2025, Epilepsy Foundation of America reported that 76.0% of its $19.0 million in expenses went to program services, 15.0% to management and general and 9.0% to fundraising (Form 990, Part IX).
How much does Epilepsy Foundation of America pay its top executive?
The largest total compensation Epilepsy Foundation of America reported for one person in the fiscal year ending June 30, 2025 was $481,358, for the role of CHIEF EXECUTIVE OFFICER (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does Epilepsy Foundation of America get its money?
Of $16.2 million in revenue in the fiscal year ending June 30, 2025, 104.4% came from contributions and grants (including 22.1% from government grants) and 2.7% from program service revenue (Form 990, Part VIII).
Is Epilepsy Foundation of America a registered charity?
The IRS lists EIN 52-0856660 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- FY2025: Form 990 for the fiscal year ending June 30, 2025, object 202611079349300326 · read the filing · XML
- FY2024: Form 990 for the fiscal year ending June 30, 2024, object 202541299349302999 · read the filing
- FY2023: Form 990 for the fiscal year ending June 30, 2023, object 202421359349300432 · read the filing
- FY2022: Form 990 for the fiscal year ending June 30, 2022, object 202320469349301687 · read the filing
- FY2021: Form 990 for the fiscal year ending June 30, 2021, object 202240689349300704 · read the filing
- FY2020: Form 990 for the fiscal year ending June 30, 2020, object 202023219349308517 · read the filing
All filings for EIN 52-0856660: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.