Immune Deficiency Foundation
Immune Deficiency Foundation reported $11.4 million in revenue and $8.4 million in expenses for calendar year 2025. Of every $100 it spent, $70.06 went to program services, $18.44 to management and general costs and $11.50 to fundraising. Its largest source of revenue was contributions and grants: 93.4% of the total. The highest compensation it reported for one person was $392,480 (PRESIDENT &). 4 people received more than $100,000 in reportable compensation. Revenue rose 21% between 2019 and 2025. Source: Form 990, 2025.
Where $100 of spending went
Calendar year 2025 · Form 990, Part IX, line 25 · total expenses $8.4MFor context, the median across 169 covered medical research charities: $87.02 programs, $12.87 management, $0.11 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2025 · Form 990, Part VIII · total revenue $11MThe 990 scorecard · same measures for every charity, no grades
| Measure | 2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 70.1% | 83.9% |
| Management & general Part IX 25(C) ÷ 25(A) | 18.4% | 12.4% |
| Fundraising Part IX 25(D) ÷ 25(A) | 11.5% | 0.1% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.09 | $0.01 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 93.4% | 72.7% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.0% | 0.0% |
| Program service revenue share Part VIII 2g ÷ 12 | 0.4% | 5.8% |
| Highest reported compensation Part VII-A, columns D–F | $392,480 | $628,890 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 4.69% | 1.94% |
| People paid over $100,000 Part VII, line 2 | 4 | 18 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 31.3 | 13.3 |
| Independent voting board members Part VI 1a–1b | 14 of 14 | 93.8% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2025 · Form 990, Part III · the three largest programs by expenseImmune Deficiency Foundation provided educational programs and services for patients and families living with primary immunodeficiencies (pi). In 2025, approximately 34,030 individuals were provided with education and support through publications, webinars, videos and podcast episodes, get connected group meetings, and teen and young adult activities. There were 2 million website visitors, over 480,000 views on youtube and 2,600 compromised documentary screening requests. Since the launch, more than 14,000 people have utilized the immune system self-assessment tool on our website
The pi community relies on individual assistance including but not limited to answering insurance questions, locating a specialist in their area, finding treatment information, and learning more about their diagnosis. Our patient advocacy specialists provided answers to over 2,200 questions from individuals seeking education, information, and assistance. The organization also works at the federal and state levels to educate lawmakers and the public about issues such as vaccine access and insurance coverage challenges, that impact those who are immunocompromised. A strong volunteer grassroots…
To improve the diagnosis, treatment, and quality of life of those affected by pi, there are several initiatives to provide resources directly to the medical community, including attending fourteen medical conferences, providing information, education and resources to over 14,000 healthcare professionals, and administering a consulting immunologist program that allows clinicians to consult with an expert clinical immunologist to obtain valuable diagnostic, treatment, and disease management information. In 2025 we launched an accredited continuing medical education (cme) program to equip…
Highest reported compensation
2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| PRESIDENT & Officer, 40.00 hrs/week | $335,604 | $0 | $56,876 | $392,480 |
| CHIEF DEV. O Highest compensated employee, 40.00 hrs/week | $162,151 | $0 | $22,272 | $184,423 |
| CFO Officer, 40.00 hrs/week | $154,436 | $0 | $26,921 | $181,357 |
| CHIEF COMM. Highest compensated employee, 40.00 hrs/week | $157,990 | $0 | $21,182 | $179,172 |
| CTO Highest compensated employee, 40.00 hrs/week | $145,885 | $0 | $30,913 | $176,798 |
| PUB. POLICY Highest compensated employee, 40.00 hrs/week | $148,985 | $0 | $21,932 | $170,917 |
| DIR OF EDU & Highest compensated employee, 40.00 hrs/week | $139,446 | $0 | $24,512 | $163,958 |
4 people received more than $100,000 in reportable compensation from Immune Deficiency Foundation (Part VII, line 2). Compensation of current officers, directors and key employees totaled $574K (Part IX, line 5).
7 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b14 · 14 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bNo
- Employees Part I, line 546
- Volunteers Part I, line 6603
Largest outside contractors
2025 · Form 990, Part VII, Section B · businesses only| FAEGRE DRINKER BIDDLE & REATH LLP Public policy | $165,602 |
| PLENTY CONSULTING INC Consulting | $140,879 |
| THE MT ROYAL PRINTING COMPANY Consulting | $109,888 |
| NEVINS & ASSOCIATES Consulting | $108,075 |
Individuals listed as contractors are left out. 4 contractors were paid more than $100,000 in all.
Private foundation grants it received
21 private foundations reported grants to Immune Deficiency Foundation totaling $43,403 on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from Immune Deficiency Foundation's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Immune Deficiency Foundation, you can publish a response that is linked from this page.
Share or embed this breakdown
Of every $100 Immune Deficiency Foundation spent in 2025, $70.06 went to programs. The full breakdown, from its IRS Form 990:
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All medical research charities · Largest charities in Maryland
Questions people ask
How much of Immune Deficiency Foundation's spending goes to programs?
In calendar year 2025, Immune Deficiency Foundation reported that 70.1% of its $8.4 million in expenses went to program services, 18.4% to management and general and 11.5% to fundraising (Form 990, Part IX).
How much does Immune Deficiency Foundation pay its top executive?
The largest total compensation Immune Deficiency Foundation reported for one person in calendar year 2025 was $392,480, for the role of PRESIDENT & (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does Immune Deficiency Foundation get its money?
Of $11.4 million in revenue in calendar year 2025, 93.4% came from contributions and grants and 0.4% from program service revenue (Form 990, Part VIII).
Is Immune Deficiency Foundation a registered charity?
The IRS lists EIN 52-1214782 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024, 2025. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2025: Form 990 for calendar year 2025, object 202642019349300419 · read the filing · XML
- 2024: Form 990 for calendar year 2024, object 202531899349301003 · read the filing
- 2023: Form 990 for calendar year 2023, object 202401799349300940 · read the filing
- 2022: Form 990 for calendar year 2022, object 202321649349300922 · read the filing
- 2021: Form 990 for calendar year 2021, object 202201739349301420 · read the filing
- 2020: Form 990 for calendar year 2020, object 202122089349300012 · read the filing
- 2019: Form 990 for calendar year 2019, object 202022679349300522 · read the filing
All filings for EIN 52-1214782: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.