ALS Network
ALS Network reported $13.5 million in revenue and $12.0 million in expenses for the fiscal year ending January 31, 2025. Of every $100 it spent, $85.35 went to program services, $6.87 to management and general costs and $7.78 to fundraising. Its largest source of revenue was contributions and grants: 96.5% of the total. Government grants made up 26.0%. The highest compensation it reported for one person was $411,567 (President Emeritus). 10 people received more than $100,000 in reportable compensation. Revenue rose 29% between FY2020 and FY2025. Source: Form 990, FY2025.
Where $100 of spending went
The fiscal year ending January 31, 2025 · Form 990, Part IX, line 25 · total expenses $12MFor context, the median across 5,634 covered health care charities: $86.19 programs, $13.81 management, $0.00 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
The fiscal year ending January 31, 2025 · Form 990, Part VIII · total revenue $13MThe 990 scorecard · same measures for every charity, no grades
| Measure | FY2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 85.4% | 85.6% |
| Management & general Part IX 25(C) ÷ 25(A) | 6.9% | 13.7% |
| Fundraising Part IX 25(D) ÷ 25(A) | 7.8% | 0.0% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.07 | $0.00 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 96.5% | 1.3% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 26.0% | 0.1% |
| Program service revenue share Part VIII 2g ÷ 12 | 0.9% | 93.7% |
| Highest reported compensation Part VII-A, columns D–F | $411,567 | $975,831 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 3.44% | 1.34% |
| People paid over $100,000 Part VII, line 2 | 10 | 27 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 14.7 | 6.6 |
| Independent voting board members Part VI 1a–1b | 18 of 18 | 88.9% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
FY2025 · Form 990, Part III · the three largest programs by expenseOur mission critical program priorities include care services, research, and advocacy. These programs are provided to people with ALS and their families at no charge. Our accomplishments for fiscal year ending 1/31/24 are as follows:Care Management -Strategically based in and near patients' home communities, ALS Network Care Managers (CMs) work directly with persons with ALS and their families and serve as part of the treatment team in collaboration with clinicians from ALS specialty care clinics. Among other things, CMs provide critical information and referrals to patients and families…
Community Outreach & Awareness/Public Policy -Community outreach events, including our ALS Walk & Rolls, are opportunities to bring hope and a sense of community to persons with ALS and their families. By coming together to share their stories, people with ALS and their families, as well as those who have lost loved ones to ALS, find strength and support with one another. Community outreach events create an environment of empowerment where families and friends of persons with ALS are given an opportunity to affect public policy by signing petitions that are sent to the legislators…
ALS Clinic Support - ALS Network is committed to making sure people living with ALS have access to specialized care that is based on best practices. Proven by research to help people with ALS live longer and better lives, access to high quality specialty care is one of the cornerstones of the ALS Network wraparound model of care. Care services staff members are embedded in each ALS specialty clinic, where they act as key members of the multidisciplinary team and provide comprehensive support to persons with ALS and their family members/caregivers. This model of care brings together a team of…
Highest reported compensation
FY2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| President Emeritus Officer, 40.00 hrs/week | $398,596 | $0 | $12,971 | $411,567 |
| CEO & President Officer, 40.00 hrs/week | $354,445 | $0 | $21,358 | $375,803 |
| Exec VP, Mission Advancement Highest compensated employee, 40.00 hrs/week | $239,404 | $0 | $21,506 | $260,910 |
| VP of Community Outreach Highest compensated employee, 40.00 hrs/week | $153,732 | $0 | $13,840 | $167,572 |
| VP of Care Services Highest compensated employee, 40.00 hrs/week | $145,245 | $0 | $13,739 | $158,984 |
| Sr Dir Finance & Admin. Highest compensated employee, 40.00 hrs/week | $146,976 | $0 | $6,243 | $153,219 |
| Sr. Director, Marketing & Communications Highest compensated employee, 40.00 hrs/week | $132,501 | $0 | $9,609 | $142,110 |
10 people received more than $100,000 in reportable compensation from ALS Network (Part VII, line 2). Compensation of current officers, directors and key employees totaled $798K (Part IX, line 5).
6 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
FY2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b18 · 18 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bNo
- Employees Part I, line 564
- Volunteers Part I, line 6592
Largest outside contractors
FY2025 · Form 990, Part VII, Section B · businesses only| Hyatt Event location | $490,602 |
Individuals listed as contractors are left out. 2 contractors were paid more than $100,000 in all.
Private foundation grants it received
19 private foundations reported grants to ALS Network totaling $95,931 on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from ALS Network's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for ALS Network, you can publish a response that is linked from this page.
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Of every $100 ALS Network spent in FY2025, $85.35 went to programs. The full breakdown, from its IRS Form 990:
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Similar-sized charities in this cause
- AcclivusChicago, IL · revenue $13M · programs 91.4% · 2023
- Crandall Medical CenterSebring, OH · revenue $13M · programs 82.0% · FY2025
- Bienestar Human ServicesLos Angeles, CA · revenue $13M · programs 81.9% · FY2025
- Rural Health Resource CenterDuluth, MN · revenue $13M · programs 85.9% · FY2025
- Skaalen Nursing and Rehabilitation CenterStoughton, WI · revenue $13M · programs 80.9% · 2024
Questions people ask
How much of ALS Network's spending goes to programs?
In the fiscal year ending January 31, 2025, ALS Network reported that 85.4% of its $12.0 million in expenses went to program services, 6.9% to management and general and 7.8% to fundraising (Form 990, Part IX).
How much does ALS Network pay its top executive?
The largest total compensation ALS Network reported for one person in the fiscal year ending January 31, 2025 was $411,567, for the role of President Emeritus (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does ALS Network get its money?
Of $13.5 million in revenue in the fiscal year ending January 31, 2025, 96.5% came from contributions and grants (including 26.0% from government grants) and 0.9% from program service revenue (Form 990, Part VIII).
Is ALS Network a registered charity?
The IRS lists EIN 95-4163338 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- FY2025: Form 990 for the fiscal year ending January 31, 2025, object 202533499349301608 · read the filing · XML
- FY2024: Form 990 for the fiscal year ending January 31, 2024, object 202403479349300420 · read the filing
- FY2023: Form 990 for the fiscal year ending January 31, 2023, object 202323489349300837 · read the filing
- FY2022: Form 990 for the fiscal year ending January 31, 2022, object 202223489349300722 · read the filing
- FY2021: Form 990 for the fiscal year ending January 31, 2021, object 202113489349301636 · read the filing
- FY2020: Form 990 for the fiscal year ending January 31, 2020, object 202003469349301030 · read the filing
All filings for EIN 95-4163338: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.