International Myeloma Foundation
International Myeloma Foundation reported $18.3 million in revenue and $18.5 million in expenses for the fiscal year ending September 30, 2025. Of every $100 it spent, $85.43 went to program services, $6.72 to management and general costs and $7.85 to fundraising. Its largest source of revenue was contributions and grants: 98.1% of the total. The highest compensation it reported for one person was $861,304 (CHIEF SCIENTIFIC OFFICER THRU 7/8/24). 22 people received more than $100,000 in reportable compensation. Revenue rose 23% between FY2020 and FY2025. Source: Form 990, FY2025.
Where $100 of spending went
The fiscal year ending September 30, 2025 · Form 990, Part IX, line 25 · total expenses $18MFor context, the median across 2,433 covered unclassified charities: $88.27 programs, $11.68 management, $0.05 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
The fiscal year ending September 30, 2025 · Form 990, Part VIII · total revenue $18MThe 990 scorecard · same measures for every charity, no grades
| Measure | FY2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 85.4% | 86.7% |
| Management & general Part IX 25(C) ÷ 25(A) | 6.7% | 11.5% |
| Fundraising Part IX 25(D) ÷ 25(A) | 7.9% | 0.0% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.08 | $0.01 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 98.1% | 29.9% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.0% | 3.8% |
| Program service revenue share Part VIII 2g ÷ 12 | 0.1% | 58.9% |
| Highest reported compensation Part VII-A, columns D–F | $861,304 | $301,601 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 4.67% | 1.38% |
| People paid over $100,000 Part VII, line 2 | 22 | 6 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 7.0 | 6.8 |
| Independent voting board members Part VI 1a–1b | 15 of 15 | 100.0% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
FY2025 · Form 990, Part III · the three largest programs by expenseResearch - the International Myeloma Foundation (imf) is the leader in globally collaborative myeloma research. Imf brings together the world's leading experts to collaborate on translational research through the International Myeloma working group (imwg), which publishes treatment guidelines in prestigious medical journals, advances research toward prevention and cure, mentors the next generation of innovative investigators, and improves lives through better care. Imwg is considered the most prestigious organization for myeloma researchers globally. The black swan research initiative is a…
Education and awareness - although it is the second most common blood cancer, multiple myeloma is still a relatively unknown disease. For many patients and their caregivers, it is at diagnosis when they first heard the word "myeloma". Imf recognizes the need for comprehensive education programs for both the patient and the physician to ensure that patients are diagnosed correctly and treated effectively.our library of more than 100 publications for patients, caregivers and healthcare professionals, is available free of charge. Publications are updated annually and available in more than 19…
Patient and family seminars: the imf's patient and family seminars present vital information about new treatments and clinical trials, provide time with myeloma specialists in intimate settings, and allow participants to share their personal experiences and support. Premier myeloma experts volunteer their time to empower patients and their families to make educated treatment choices tailored to their needs. In addition to patient and family seminars, the imf facilitates regional community workshops, which serve as condensed seminars in smaller cities to expand the reach of imf programs and…
Highest reported compensation
FY2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| CHIEF SCIENTIFIC OFFICER THRU 7/8/24 Highest compensated employee, 40.00 hrs/week | $845,219 | $0 | $16,085 | $861,304 |
| CHIEF MEDICAL OFFICER THRU 3/31/26 Highest compensated employee, 40.00 hrs/week | $451,416 | $0 | $21,819 | $473,235 |
| CEO, PRESIDENT THRU 2/28/25 Director/trustee, officer, 40.00 hrs/week | $430,000 | $0 | $23,307 | $453,307 |
| INTERIM CEO, SENIOR VICE PRESIDENT Officer, 40.00 hrs/week | $427,784 | $0 | $16,916 | $444,700 |
| CHIEF FINANCIAL OFFICER THRU 3/13/26 Officer, 40.00 hrs/week | $303,088 | $0 | $25,436 | $328,524 |
| EXECUTIVE VICE PRESIDENT Key employee, 40.00 hrs/week | $272,519 | $0 | $30,207 | $302,726 |
| VICE PRESIDENT, MARKETING Key employee, 40.00 hrs/week | $247,200 | $0 | $35,430 | $282,630 |
| FORMER - DIRECTOR OF GLOBAL PATIENT Former, 0.00 hrs/week | $267,800 | $0 | $0 | $267,800 |
22 people received more than $100,000 in reportable compensation from International Myeloma Foundation (Part VII, line 2). Compensation of current officers, directors and key employees totaled $1.9M (Part IX, line 5).
6 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
FY2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b15 · 15 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2Yes
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bYes
- Employees Part I, line 557
- Volunteers Part I, line 6317
Private foundation grants it received
33 private foundations reported grants to International Myeloma Foundation totaling $795K on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from International Myeloma Foundation's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for International Myeloma Foundation, you can publish a response that is linked from this page.
Share or embed this breakdown
Of every $100 International Myeloma Foundation spent in FY2025, $85.43 went to programs. The full breakdown, from its IRS Form 990:
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All unclassified charities · Largest charities in California
Questions people ask
How much of International Myeloma Foundation's spending goes to programs?
In the fiscal year ending September 30, 2025, International Myeloma Foundation reported that 85.4% of its $18.5 million in expenses went to program services, 6.7% to management and general and 7.9% to fundraising (Form 990, Part IX).
How much does International Myeloma Foundation pay its top executive?
The largest total compensation International Myeloma Foundation reported for one person in the fiscal year ending September 30, 2025 was $861,304, for the role of CHIEF SCIENTIFIC OFFICER THRU 7/8/24 (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does International Myeloma Foundation get its money?
Of $18.3 million in revenue in the fiscal year ending September 30, 2025, 98.1% came from contributions and grants and 0.1% from program service revenue (Form 990, Part VIII).
Is International Myeloma Foundation a registered charity?
The IRS lists EIN 95-4296919 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- FY2025: Form 990 for the fiscal year ending September 30, 2025, object 202641409349301144 · read the filing
- FY2024: Form 990 for the fiscal year ending September 30, 2024, object 202511539349301151 · read the filing
- FY2023: Form 990 for the fiscal year ending September 30, 2023, object 202442079349300024 · read the filing
- FY2022: Form 990 for the fiscal year ending September 30, 2022, object 202321529349300742 · read the filing
- FY2021: Form 990 for the fiscal year ending September 30, 2021, object 202202249349302825 · read the filing
- FY2020: Form 990 for the fiscal year ending September 30, 2020 (amended), object 202223219349301322 · read the filing
All filings for EIN 95-4296919: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.