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American Parkinson Disease Assoc

Staten Island, NY · EIN 13-1962771 · 501(c)(3) · Publicly supported organization (170(b)(1)(A)(vi))
Latest filing: Form 990 for the 4-month short period ending December 31, 2025 (tax year 2025) · View the filing · Correct or respond

American Parkinson Disease Assoc reported $18.8 million in revenue and $19.4 million in expenses for the fiscal year ending August 31, 2025. Of every $100 it spent, $74.85 went to program services, $9.26 to management and general costs and $15.89 to fundraising. Its largest source of revenue was contributions and grants: 98.6% of the total. The highest compensation it reported for one person was $392,353 (PRESIDENT/CEO). 11 people received more than $100,000 in reportable compensation. Revenue rose 63% between FY2020 and FY2025. Source: Form 990, FY2025 (4 mo.).

Where $100 of spending went

The 4-month short period ending December 31, 2025 · Form 990, Part IX, line 25 · total expenses $19M

For context, the median across 314 covered diseases, disorders & medical disciplines charities: $88.73 programs, $10.89 management, $0.38 fundraising (medians computed separately, so they may not sum to $100).

Where $100 of revenue came from

The 4-month short period ending December 31, 2025 · Form 990, Part VIII · total revenue $19M

Other revenue was negative: −$101K. The bar shows the positive sources only.

The 990 scorecard · same measures for every charity, no grades

FY2025 filing. Median across 314 covered charities in this category, from their latest filings.
MeasureFY2025Median
Program services
Part IX 25(B) ÷ 25(A)
74.9%86.7%
Management & general
Part IX 25(C) ÷ 25(A)
9.3%10.6%
Fundraising
Part IX 25(D) ÷ 25(A)
15.9%0.4%
Fundraising cost per $1 of contributions
Part IX 25(D) ÷ Part VIII 1h
$0.17$0.03
Contributions & grants share of revenue
Part VIII 1h ÷ 12
98.6%24.7%
Government grants share of revenue
Part VIII 1e ÷ 12
0.0%0.6%
Program service revenue share
Part VIII 2g ÷ 12
0.0%59.5%
Highest reported compensation
Part VII-A, columns D–F
$392,353$391,657
Highest compensation as share of expenses
Part VII-A ÷ Part IX 25(A)
2.02%1.45%
People paid over $100,000
Part VII, line 2
1110
Net assets, in months of expenses
Part X 33(B) ÷ monthly expenses
16.87.6
Independent voting board members
Part VI 1a–1b
9 of 9100.0%

A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.

What the money paid for, in its own words

FY2025 (4 mo.) · Form 990, Part III · the three largest programs by expense
$6.1M expenses · 42.2% of program spending

Public awareness - apda currently provides (on-line and in print) more than 66 free educational publications, 36 in english, 22 in spanish, and 8 in simplified chinese to address medical and social aspects of the diagnosis, treatment, and care of people with Parkinson Disease. These publications and additional information distributed through apda's 12 active chapters, 17 information & referral center grants (7 traditional centers and 10 projects, extensive website in english and spanish, and "800" telephone helpline in several languages. Apda also raises awareness through television public…

$5.8M expenses · 40.1% of program spending · grants $2.1M

Patient services and educational programs - apda aims to support every person and every family impacted by parkinson's. Through its nationwide system of chapters, information & referral (I&r) centers, and community partners. Apda uniquely delivers education, support and patient services to anyone with parkinson's disease and their families each day. 17 information and referral centers are grant funded along with community grants across in the US to expand the reach in underserved communities. Apda conducted over 50 patient education webinars virtually and in person regarding education on…

$2.6M expenses · 17.6% of program spending · grants $1.3M

Research - apda proudly invests in eight centers for advanced research and supports grants to fund the most promising science focused on discovering the cause(s) and finding the cure for parkinson's disease. Since its founding in 1961, apda has been a funding partner in many of the major pd scientific breakthroughs

Highest reported compensation

FY2025 (4 mo.) · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here
RoleFrom this orgFrom related orgsOtherTotal
PRESIDENT/CEO
Officer, 40.00 hrs/week
$331,025$0$61,328$392,353
CHIEF OPERATIONS OFFICER
Officer, 40.00 hrs/week
$209,003$0$58,531$267,534
CHIEF MISSION OFFICER
Officer, 32.00 hrs/week
$211,444$0$26,938$238,382
VP, DEVELOPMENT
Key employee, 40.00 hrs/week
$178,578$0$54,449$233,027
VP DEVELOPMENT/MKTG & COMMUNICATION
Highest compensated employee, 40.00 hrs/week
$159,646$0$37,921$197,567
REGIONAL DIRECTOR
Highest compensated employee, 40.00 hrs/week
$135,341$0$48,718$184,059
REGIONAL DIRECTOR
Highest compensated employee, 40.00 hrs/week
$145,296$0$38,240$183,536
REGIONAL DIRECTOR
Highest compensated employee, 40.00 hrs/week
$142,724$0$38,249$180,973

11 people received more than $100,000 in reportable compensation from American Parkinson Disease Assoc (Part VII, line 2). Compensation of current officers, directors and key employees totaled $1.2M (Part IX, line 5).

7 filings since FY2020

Form 990, Parts I, VII, IX and X · each row is that year's own filing, linked
RevenueExpensesShort periods (after a fiscal-year change) are in the table, not the chart.
$0$10M$20M$30M$40MFY2020FY2021FY2022FY2023FY2024FY2025$19M$19M
FilingRevenueExpensesProgramsNet assetsTop pay
FY2025 (4 mo.) ⓘ$12M$8.2M76.3%$32M$408,810
FY2025 ⓘ$19M$19M74.9%$27M$392,353
FY2024 ⓘ$23M$18M72.7%$27M$372,135
FY2023 ⓘ$13M$15M75.8%$21M$343,632
FY2022 ⓘ$19M$12M73.9%$23M$341,151
FY2021 ⓘ$15M$12M74.8%$17M$319,544
FY2020 ⓘ$12M$12M75.4%$14M$323,814

Governance answers, as filed

FY2025 (4 mo.) · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means
  • Voting board members, and how many are independent Part VI, lines 1a–1b9 · 9 independent
  • Audited financial statements Part XII 2bYes
  • Conflict-of-interest policy Part VI 12aYes
  • Whistleblower policy Part VI 13Yes
  • Document retention policy Part VI 14Yes
  • Independent process for top executive pay Part VI 15aYes
  • Board given the 990 before filing Part VI 11aYes
  • Family or business ties among insiders Part VI 2Yes
  • Aware of a significant diversion of assets Part VI 5No
  • Excess benefit transaction with an insider Part IV 25aNo
  • Loans to or from insiders outstanding Part IV 26No
  • Lobbying, or a 501(h) election in effect Part IV 4Yes
  • Over $15,000 of professional fundraising services Part IV 18Yes
  • Over $10,000 of activity outside the U.S. Part IV 14bYes
  • Employees Part I, line 558
  • Volunteers Part I, line 6678

Largest outside contractors

FY2025 (4 mo.) · Form 990, Part VII, Section B · businesses only
MOORE A SERIES LLC
Direct mail consultants
$2,874,551
WISS & COMPANY LLP
Audit, tax & netsuite it services
$319,319
AUDIENCE 1ST MEDIA
Audience marketing
$266,925
PERLMAN & PERLMAN LLP
Legal services
$139,795
YOUR PART-TIME CONTROLLER LLC
Accounting services
$101,241

Individuals listed as contractors are left out. 5 contractors were paid more than $100,000 in all.

Private foundation grants it received

96 private foundations reported grants to American Parkinson Disease Assoc totaling $587K on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.

Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.

Correct a figure or respond

Every number above is copied from American Parkinson Disease Assoc's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for American Parkinson Disease Assoc, you can publish a response that is linked from this page.

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Questions people ask

How much of American Parkinson Disease Assoc's spending goes to programs?

In the fiscal year ending August 31, 2025, American Parkinson Disease Assoc reported that 74.9% of its $19.4 million in expenses went to program services, 9.3% to management and general and 15.9% to fundraising (Form 990, Part IX).

How much does American Parkinson Disease Assoc pay its top executive?

The largest total compensation American Parkinson Disease Assoc reported for one person in the fiscal year ending August 31, 2025 was $392,353, for the role of PRESIDENT/CEO (Form 990, Part VII, including compensation from related organizations and other compensation).

Where does American Parkinson Disease Assoc get its money?

Of $18.8 million in revenue in the fiscal year ending August 31, 2025, 98.6% came from contributions and grants and 0.0% from program service revenue (Form 990, Part VIII).

Is American Parkinson Disease Assoc a registered charity?

The IRS lists EIN 13-1962771 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024, 2025. A filing shows what the organization reported; it doesn't by itself show whether a program works.

Sources

  • FY2025 (4 mo.): Form 990 for the 4-month short period ending December 31, 2025, object 202601359349306805 · read the filing · XML
  • FY2025: Form 990 for the fiscal year ending August 31, 2025, object 202600699349300640 · read the filing
  • FY2024: Form 990 for the fiscal year ending August 31, 2024, object 202510449349301491 · read the filing
  • FY2023: Form 990 for the fiscal year ending August 31, 2023, object 202420899349301417 · read the filing
  • FY2022: Form 990 for the fiscal year ending August 31, 2022, object 202310889349301326 · read the filing
  • FY2021: Form 990 for the fiscal year ending August 31, 2021, object 202201549349300720 · read the filing
  • FY2020: Form 990 for the fiscal year ending August 31, 2020, object 202110699349301146 · read the filing

All filings for EIN 13-1962771: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.