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Copd Foundation

Miami, FL · EIN 20-1048322 · 501(c)(3) · Publicly supported organization (170(b)(1)(A)(vi))
Latest filing: Form 990 for the fiscal year ending June 30, 2025 (tax year 2024) · View the filing · Correct or respond

Copd Foundation reported $14.4 million in revenue and $12.6 million in expenses for the fiscal year ending June 30, 2025. Of every $100 it spent, $71.29 went to program services, $20.78 to management and general costs and $7.93 to fundraising. Its largest source of revenue was contributions and grants: 94.5% of the total. The highest compensation it reported for one person was $324,799 (CHIEF EXECUTIVE OFFICER). 8 people received more than $100,000 in reportable compensation. Revenue rose 52% between FY2020 and FY2025. Source: Form 990, FY2025.

Where $100 of spending went

The fiscal year ending June 30, 2025 · Form 990, Part IX, line 25 · total expenses $13M

For context, the median across 314 covered diseases, disorders & medical disciplines charities: $88.73 programs, $10.89 management, $0.38 fundraising (medians computed separately, so they may not sum to $100).

Where $100 of revenue came from

The fiscal year ending June 30, 2025 · Form 990, Part VIII · total revenue $14M

The 990 scorecard · same measures for every charity, no grades

FY2025 filing. Median across 314 covered charities in this category, from their latest filings.
MeasureFY2025Median
Program services
Part IX 25(B) ÷ 25(A)
71.3%86.7%
Management & general
Part IX 25(C) ÷ 25(A)
20.8%10.6%
Fundraising
Part IX 25(D) ÷ 25(A)
7.9%0.4%
Fundraising cost per $1 of contributions
Part IX 25(D) ÷ Part VIII 1h
$0.07$0.03
Contributions & grants share of revenue
Part VIII 1h ÷ 12
94.5%24.7%
Government grants share of revenue
Part VIII 1e ÷ 12
0.1%0.6%
Program service revenue share
Part VIII 2g ÷ 12
1.3%59.5%
Highest reported compensation
Part VII-A, columns D–F
$324,799$391,657
Highest compensation as share of expenses
Part VII-A ÷ Part IX 25(A)
2.58%1.45%
People paid over $100,000
Part VII, line 2
810
Net assets, in months of expenses
Part X 33(B) ÷ monthly expenses
7.07.6
Independent voting board members
Part VI 1a–1b
18 of 18100.0%

A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.

What the money paid for, in its own words

FY2025 · Form 990, Part III · the three largest programs by expense
$3.3M expenses · 36.5% of program spending

Research & medicalthe Copd Foundation research team engages with multiple individuals and organizations to support research studies and clinical trials. These studies focus on a wide range of topics that align with the foundation mission. These include patient symptom treatment, virtual copd management tools, patient feedback on screening tools, and development of new therapies and medical devices to address unmet needs. The Copd Foundation research team also participated in several activities that are targeting people with early copd with the aim to develop approaches that can be used to…

$3.7M expenses · 40.7% of program spending

Bronchiectasis & ntm associationthe Copd Foundation was approved to do business as the bronchiectasis and ntm association. With this approval, we embarked on a rebranding effort, ensuring our commitment and dedication to this patient community.we had another successful world bronchiectasis day campaign, reaching over 2 million people. The campaign allowed US to bring together nearly 20 patient advocacy organizations and professional societies to collaborate in spreading awareness and education on bronchiectasis.the goal of the bronchiectasis and ntm research registry is to support…

$715K expenses · 8.0% of program spending

Communitythe copd360 community engagement committee (copd360cenco), a diverse patients and caregivers committee, continued to meet monthly to provide the voice of patients and caregivers to all the Copd Foundation's efforts, and to support its interactions with other health care and advocacy organizations. Patient and caregiver involvement in governance and education is the model on which the Copd Foundation was established. With that central goal, the Copd Foundation has built trust within its membership and related stakeholder groups.membership in the Copd Foundation captains program grew…

$1.3M all other programs (line 4d)

Highest reported compensation

FY2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here
RoleFrom this orgFrom related orgsOtherTotal
CHIEF EXECUTIVE OFFICER
Officer, 40.00 hrs/week
$295,381$0$29,418$324,799
EVP, CHIEF INFORMATION OFFICER
Officer, 40.00 hrs/week
$220,776$0$19,380$240,156
CHIEF CORPORATE RELATIONS OFFICER
Officer, 40.00 hrs/week
$165,743$0$39,531$205,274
CHIEF FINANCIAL OFFICER
Officer, 40.00 hrs/week
$168,644$0$31,524$200,168
VP, MARKETING & COMMUNICATIONS
Highest compensated employee, 40.00 hrs/week
$150,024$0$18,273$168,297
SR DIRECTOR OF FINANCE
Highest compensated employee, 40.00 hrs/week
$141,238$0$16,362$157,600
VP, BRONCHIECTASIS OPERATIONS
Highest compensated employee, 40.00 hrs/week
$123,543$0$17,328$140,871
VP, INFORMATION TECHNOLOGY & DESIGN
Highest compensated employee, 40.00 hrs/week
$119,329$0$0$119,329

8 people received more than $100,000 in reportable compensation from Copd Foundation (Part VII, line 2). Compensation of current officers, directors and key employees totaled $939K (Part IX, line 5).

6 years of filings

Form 990, Parts I, VII, IX and X · each row is that year's own filing, linked
RevenueExpenses
$0$5.0M$10M$15M$20MFY2020FY2021FY2022FY2023FY2024FY2025$14M$13M
FilingRevenueExpensesProgramsNet assetsTop pay
FY2025 ⓘ$14M$13M71.3%$7.3M$324,799
FY2024 ⓘ$11M$11M73.0%$5.4M$324,799
FY2023 ⓘ$8.0M$9.6M71.1%$5.2M$275,000
FY2022 ⓘ$8.0M$8.5M72.3%$6.8M$300,000
FY2021 ⓘ$9.0M$8.5M81.2%$8.0M$306,016
FY2020 ⓘ$9.4M$8.9M83.9%$6.5M$287,406

Governance answers, as filed

FY2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means
  • Voting board members, and how many are independent Part VI, lines 1a–1b18 · 18 independent
  • Audited financial statements Part XII 2bYes
  • Conflict-of-interest policy Part VI 12aYes
  • Whistleblower policy Part VI 13Yes
  • Document retention policy Part VI 14Yes
  • Independent process for top executive pay Part VI 15aYes
  • Board given the 990 before filing Part VI 11aYes
  • Family or business ties among insiders Part VI 2Yes
  • Aware of a significant diversion of assets Part VI 5No
  • Excess benefit transaction with an insider Part IV 25aNo
  • Loans to or from insiders outstanding Part IV 26No
  • Lobbying, or a 501(h) election in effect Part IV 4Yes
  • Over $15,000 of professional fundraising services Part IV 18No
  • Over $10,000 of activity outside the U.S. Part IV 14bNo
  • Employees Part I, line 546
  • Volunteers Part I, line 6337

Largest outside contractors

FY2025 · Form 990, Part VII, Section B · businesses only
BEM CONSULTING LLC
Contractor
$203,750
FAEGRE DRINKER BIDDLE & REATH LLP
Contractor
$148,525
DMANNINO CONSULTING LLC
Contractor
$110,000

Individuals listed as contractors are left out. 3 contractors were paid more than $100,000 in all.

Private foundation grants it received

18 private foundations reported grants to Copd Foundation totaling $212K on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.

Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.

Correct a figure or respond

Every number above is copied from Copd Foundation's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Copd Foundation, you can publish a response that is linked from this page.

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Questions people ask

How much of Copd Foundation's spending goes to programs?

In the fiscal year ending June 30, 2025, Copd Foundation reported that 71.3% of its $12.6 million in expenses went to program services, 20.8% to management and general and 7.9% to fundraising (Form 990, Part IX).

How much does Copd Foundation pay its top executive?

The largest total compensation Copd Foundation reported for one person in the fiscal year ending June 30, 2025 was $324,799, for the role of CHIEF EXECUTIVE OFFICER (Form 990, Part VII, including compensation from related organizations and other compensation).

Where does Copd Foundation get its money?

Of $14.4 million in revenue in the fiscal year ending June 30, 2025, 94.5% came from contributions and grants (including 0.1% from government grants) and 1.3% from program service revenue (Form 990, Part VIII).

Is Copd Foundation a registered charity?

The IRS lists EIN 20-1048322 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.

Sources

  • FY2025: Form 990 for the fiscal year ending June 30, 2025, object 202620419349301302 · read the filing · XML
  • FY2024: Form 990 for the fiscal year ending June 30, 2024, object 202531269349302653 · read the filing
  • FY2023: Form 990 for the fiscal year ending June 30, 2023, object 202400529349300625 · read the filing
  • FY2022: Form 990 for the fiscal year ending June 30, 2022, object 202341259349300429 · read the filing
  • FY2021: Form 990 for the fiscal year ending June 30, 2021, object 202113269349300311 · read the filing
  • FY2020: Form 990 for the fiscal year ending June 30, 2020, object 202130829349300528 · read the filing

All filings for EIN 20-1048322: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.