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Epilepsy-Pralid

Also known as Empowering People's Independence

Rochester, NY · EIN 16-1422825 · 501(c)(3) · Publicly supported organization (170(b)(1)(A)(vi))
Latest filing: Form 990 for calendar year 2024 (tax year 2024) · View the filing · Correct or respond

Epilepsy-Pralid reported $54.2 million in revenue and $47.8 million in expenses for calendar year 2024. Of every $100 it spent, $93.52 went to program services, $5.83 to management and general costs and $0.65 to fundraising. Its largest source of revenue was program service revenue such as fees, sales and contracts: 88.7% of the total. The highest compensation it reported for one person was $297,500 (PRESIDENT). 7 people received more than $100,000 in reportable compensation. Revenue rose 115% between 2019 and 2024. Source: Form 990, 2024.

Where $100 of spending went

Calendar year 2024 · Form 990, Part IX, line 25 · total expenses $48M

For context, the median across 3,614 covered human services charities: $88.27 programs, $11.52 management, $0.21 fundraising (medians computed separately, so they may not sum to $100).

Where $100 of revenue came from

Calendar year 2024 · Form 990, Part VIII · total revenue $54M

The 990 scorecard · same measures for every charity, no grades

2024 filing. Median across 3,614 covered charities in this category, from their latest filings.
Measure2024Median
Program services
Part IX 25(B) ÷ 25(A)
93.5%87.2%
Management & general
Part IX 25(C) ÷ 25(A)
5.8%11.4%
Fundraising
Part IX 25(D) ÷ 25(A)
0.7%0.2%
Fundraising cost per $1 of contributions
Part IX 25(D) ÷ Part VIII 1h
$0.06$0.02
Contributions & grants share of revenue
Part VIII 1h ÷ 12
10.3%20.6%
Government grants share of revenue
Part VIII 1e ÷ 12
0.8%2.4%
Program service revenue share
Part VIII 2g ÷ 12
88.7%70.8%
Highest reported compensation
Part VII-A, columns D–F
$297,500$274,992
Highest compensation as share of expenses
Part VII-A ÷ Part IX 25(A)
0.62%1.18%
People paid over $100,000
Part VII, line 2
76
Net assets, in months of expenses
Part X 33(B) ÷ monthly expenses
4.76.9
Independent voting board members
Part VI 1a–1b
13 of 13100.0%

A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.

What the money paid for, in its own words

2024 · Form 990, Part III · the three largest programs by expense
$28M expenses · 62.8% of program spending · revenue $30M

Self direction - gives a person the chance to choose their own services, enabling them to live the life of their choosing. With a self-directed budget, the person can choose the right supports for them including managing the budget dollars, and choosing their own staff. Approximately 950 individuals served in 2024

$12M expenses · 25.9% of program spending · revenue $13M

Residential services - enable individuals with developmental disabilities or other neurological disorders to experience the independence and self-esteem that comes with having a home of their own. Approximately 70 individuals served in 2024

$2.1M expenses · 4.6% of program spending · revenue $2.0M

Day programs - helps individuals achieve personal growth and establish relationships within their community through various social and skill building activities. Approximately 50 individuals served in 2024

$3.0M all other programs (line 4d)

Highest reported compensation

2024 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here
RoleFrom this orgFrom related orgsOtherTotal
PRESIDENT
Officer, 40.00 hrs/week
$259,075$0$38,425$297,500
CFO
Officer, 35.00 hrs/week
$163,588$0$18,850$182,438
COO
Officer, 40.00 hrs/week
$164,539$0$17,638$182,177
VP HUMAN RESOURCES
Highest compensated employee, 40.00 hrs/week
$145,178$0$19,545$164,723
VP ADVANCEMENT
Highest compensated employee, 40.00 hrs/week
$125,307$0$15,360$140,667
VP QUALITY & CCO
Highest compensated employee, 40.00 hrs/week
$104,937$0$16,999$121,936
DIRECTOR OF INFORMATION TECHNOLOGY
Highest compensated employee, 40.00 hrs/week
$100,046$0$10,308$110,354

7 people received more than $100,000 in reportable compensation from Epilepsy-Pralid (Part VII, line 2). Compensation of current officers, directors and key employees totaled $662K (Part IX, line 5).

6 years of filings

Form 990, Parts I, VII, IX and X · each row is that year's own filing, linked
RevenueExpenses
$0$20M$40M$60M$80M201920202021202220232024$54M$48M
FilingRevenueExpensesProgramsNet assetsTop pay
2024 ⓘ$54M$48M93.5%$19M$297,500
2023 ⓘ$40M$39M92.4%$12M$290,367
2022 ⓘ$42M$37M93.3%$11M$274,044
2021 ⓘ$30M$29M91.9%$6.0M$226,573
2020 ⓘ$28M$27M92.6%$5.3M$244,652
2019 ⓘ$25M$25M91.1%$4.3M$235,402

Governance answers, as filed

2024 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means
  • Voting board members, and how many are independent Part VI, lines 1a–1b13 · 13 independent
  • Audited financial statements Part XII 2bYes
  • Conflict-of-interest policy Part VI 12aYes
  • Whistleblower policy Part VI 13Yes
  • Document retention policy Part VI 14Yes
  • Independent process for top executive pay Part VI 15aYes
  • Board given the 990 before filing Part VI 11aYes
  • Family or business ties among insiders Part VI 2No
  • Aware of a significant diversion of assets Part VI 5No
  • Excess benefit transaction with an insider Part IV 25aNo
  • Loans to or from insiders outstanding Part IV 26No
  • Lobbying, or a 501(h) election in effect Part IV 4No
  • Over $15,000 of professional fundraising services Part IV 18No
  • Over $10,000 of activity outside the U.S. Part IV 14bNo
  • Employees Part I, line 51,887
  • Volunteers Part I, line 6110

Private foundation grants it received

2 private foundations reported grants to Epilepsy-Pralid totaling $1,164 on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.

Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.

Correct a figure or respond

Every number above is copied from Epilepsy-Pralid's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Epilepsy-Pralid, you can publish a response that is linked from this page.

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Questions people ask

How much of Epilepsy-Pralid's spending goes to programs?

In calendar year 2024, Epilepsy-Pralid reported that 93.5% of its $47.8 million in expenses went to program services, 5.8% to management and general and 0.7% to fundraising (Form 990, Part IX).

How much does Epilepsy-Pralid pay its top executive?

The largest total compensation Epilepsy-Pralid reported for one person in calendar year 2024 was $297,500, for the role of PRESIDENT (Form 990, Part VII, including compensation from related organizations and other compensation).

Where does Epilepsy-Pralid get its money?

Of $54.2 million in revenue in calendar year 2024, 10.3% came from contributions and grants (including 0.8% from government grants) and 88.7% from program service revenue (Form 990, Part VIII).

Is Epilepsy-Pralid a registered charity?

The IRS lists EIN 16-1422825 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.

Sources

  • 2024: Form 990 for calendar year 2024, object 202522479349300027 · read the filing
  • 2023: Form 990 for calendar year 2023, object 202412999349301641 · read the filing
  • 2022: Form 990 for calendar year 2022, object 202333139349304613 · read the filing
  • 2021: Form 990 for calendar year 2021, object 202222779349300327 · read the filing
  • 2020: Form 990 for calendar year 2020, object 202133099349303033 · read the filing
  • 2019: Form 990 for calendar year 2019, object 202033149349303148 · read the filing

All filings for EIN 16-1422825: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.