Center for Information and Study on Clinical Research Participation
Center for Information and Study on Clinical Research Participation reported $13.9 million in revenue and $12.7 million in expenses for calendar year 2025. Of every $100 it spent, $84.99 went to program services, $11.58 to management and general costs and $3.43 to fundraising. Its largest source of revenue was program service revenue such as fees, sales and contracts: 95.8% of the total. The highest compensation it reported for one person was $305,084 (CFO & COO). 10 people received more than $100,000 in reportable compensation. Revenue rose 139% between 2019 and 2025. Source: Form 990, 2025.
Where $100 of spending went
Calendar year 2025 · Form 990, Part IX, line 25 · total expenses $13MFor context, the median across 169 covered medical research charities: $87.02 programs, $12.87 management, $0.11 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2025 · Form 990, Part VIII · total revenue $14MThe 990 scorecard · same measures for every charity, no grades
| Measure | 2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 85.0% | 83.9% |
| Management & general Part IX 25(C) ÷ 25(A) | 11.6% | 12.4% |
| Fundraising Part IX 25(D) ÷ 25(A) | 3.4% | 0.1% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.98 | $0.01 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 3.2% | 72.7% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.0% | 0.0% |
| Program service revenue share Part VIII 2g ÷ 12 | 95.8% | 5.8% |
| Highest reported compensation Part VII-A, columns D–F | $305,084 | $628,890 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 2.40% | 1.94% |
| People paid over $100,000 Part VII, line 2 | 10 | 18 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 7.7 | 13.3 |
| Independent voting board members Part VI 1a–1b | 3 of 4 | 93.8% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2025 · Form 990, Part III · the three largest programs by expenseHealth communication services - provide study volunteers with the results of their clinical trial by creating and delivering plain language summaries, plain language translations of informed consent documents, legal documents, websites, plain language summaries of publications & protocol synopses. Health literacy education and workshops
Research services - engaging patients and their support network to obtain meaningful insights for sponsors - including but not limited to pharmaceutical, biotechnology and medical device companies, contract research organizations, academic and for-profit institutions, foundations and nonprofit organizations. Provide patient & care partner advisory boards, clinical trial journey workshops, and custom research projects
Content licensing - licensing or purchase of ciscrp educational content, videos and brochures
Highest reported compensation
2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| CFO & COO Officer, 40.00 hrs/week | $267,554 | $0 | $37,530 | $305,084 |
| CHIEF RESEARCH AND INSIGHTS OFFICER Highest compensated employee, 40.00 hrs/week | $243,316 | $0 | $26,134 | $269,450 |
| SR. DIRECTOR, RESEARCH SERVICES Highest compensated employee, 40.00 hrs/week | $153,194 | $0 | $24,550 | $177,744 |
| SR. DIRECTOR, HEALTH COMM. SERVICES Highest compensated employee, 40.00 hrs/week | $144,140 | $0 | $29,538 | $173,678 |
| DIRECTOR, HEALTH LITERACY Highest compensated employee, 40.00 hrs/week | $132,434 | $0 | $29,248 | $161,682 |
| DIRECTOR, HEALTH COMM. SERVICES Highest compensated employee, 40.00 hrs/week | $130,850 | $0 | $22,025 | $152,875 |
| BOARD CHAIR Director/trustee, officer, 8.00 hrs/week | $91,502 | $0 | $0 | $91,502 |
10 people received more than $100,000 in reportable compensation from Center for Information and Study on Clinical Research Participation (Part VII, line 2). Compensation of current officers, directors and key employees totaled $397K (Part IX, line 5).
7 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b4 · 3 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aNo
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4No
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bNo
- Employees Part I, line 567
- Volunteers Part I, line 650
Largest outside contractors
2025 · Form 990, Part VII, Section B · businesses only| 923 DIGITAL LLC Ai consultant & developer | $200,800 |
| 13TH FLOOR ENTERPRISES LLC Rv rental & operations | $128,426 |
Individuals listed as contractors are left out. 2 contractors were paid more than $100,000 in all.
Private foundation grants it received
1 private foundation reported grants to Center for Information and Study on Clinical Research Participation totaling $31 on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from Center for Information and Study on Clinical Research Participation's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Center for Information and Study on Clinical Research Participation, you can publish a response that is linked from this page.
Share or embed this breakdown
Of every $100 Center for Information and Study on Clinical Research Participation spent in 2025, $84.99 went to programs. The full breakdown, from its IRS Form 990:
Embed on your site
Similar-sized charities in this cause
- Eye and Ear FoundationPittsburgh, PA · revenue $14M · programs 85.5% · FY2025
- The Jacobs InstituteBuffalo, NY · revenue $14M · programs 78.0% · 2025
- Health Effects InstituteBoston, MA · revenue $13M · programs 87.7% · FY2025
- New Jersey Health FoundationPrinceton, NJ · revenue $14M · programs 95.0% · FY2025
- Coalition of Cancer Cooperative GroupsPhiladelphia, PA · revenue $13M · programs 74.3% · FY2025
All medical research charities · Largest charities in Massachusetts
Questions people ask
How much of Center for Information and Study on Clinical Research Participation's spending goes to programs?
In calendar year 2025, Center for Information and Study on Clinical Research Participation reported that 85.0% of its $12.7 million in expenses went to program services, 11.6% to management and general and 3.4% to fundraising (Form 990, Part IX).
How much does Center for Information and Study on Clinical Research Participation pay its top executive?
The largest total compensation Center for Information and Study on Clinical Research Participation reported for one person in calendar year 2025 was $305,084, for the role of CFO & COO (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does Center for Information and Study on Clinical Research Participation get its money?
Of $13.9 million in revenue in calendar year 2025, 3.2% came from contributions and grants and 95.8% from program service revenue (Form 990, Part VIII).
Is Center for Information and Study on Clinical Research Participation a registered charity?
The IRS lists EIN 20-0588190 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024, 2025. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2025: Form 990 for calendar year 2025, object 202631199349302088 · read the filing
- 2024: Form 990 for calendar year 2024, object 202531079349300803 · read the filing
- 2023: Form 990 for calendar year 2023, object 202421269349300022 · read the filing
- 2022: Form 990 for calendar year 2022, object 202301169349301445 · read the filing
- 2021: Form 990 for calendar year 2021, object 202201169349301735 · read the filing
- 2020: Form 990 for calendar year 2020, object 202111269349302016 · read the filing
- 2019: Form 990 for calendar year 2019, object 202011219349300526 · read the filing
All filings for EIN 20-0588190: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.