Chordoma Foundation
Chordoma Foundation reported $13.4 million in revenue and $6.1 million in expenses for calendar year 2025. Of every $100 it spent, $78.73 went to program services, $7.84 to management and general costs and $13.43 to fundraising. Its largest source of revenue was contributions and grants: 94.6% of the total. The highest compensation it reported for one person was $243,190 (HEAD OF PHILANTHROPY). 8 people received more than $100,000 in reportable compensation. Revenue rose 160% between 2019 and 2025. Source: Form 990, 2025.
Where $100 of spending went
Calendar year 2025 · Form 990, Part IX, line 25 · total expenses $6.1MFor context, the median across 171 covered medical research charities: $87.10 programs, $12.79 management, $0.11 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2025 · Form 990, Part VIII · total revenue $13MThe 990 scorecard · same measures for every charity, no grades
| Measure | 2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 78.7% | 83.8% |
| Management & general Part IX 25(C) ÷ 25(A) | 7.8% | 12.3% |
| Fundraising Part IX 25(D) ÷ 25(A) | 13.4% | 0.1% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.06 | $0.01 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 94.6% | 75.1% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.0% | 0.1% |
| Program service revenue share Part VIII 2g ÷ 12 | 0.0% | 5.5% |
| Highest reported compensation Part VII-A, columns D–F | $243,190 | $623,564 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 3.97% | 1.99% |
| People paid over $100,000 Part VII, line 2 | 8 | 18 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 29.5 | 13.3 |
| Independent voting board members Part VI 1a–1b | 11 of 13 | 92.9% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2025 · Form 990, Part III · the three largest programs by expense(research) to accelerate the development of better treatments for chordoma, we conducted, supported and enabled high-impact research spanning basic, translational and clinical science. This included carrying out preclinical studies in our laboratory, awarding research grants to academic investigators, operating repositories to supply the research community with key research-enabling resources, convening scientific meetings, and facilitating the design and initiation of well-justified clinical trials
(patient services) to improve the lives of individuals affected by chordoma, we helped patients and their families find accurate information about chordoma and treatment options, overcome barriers to care, and get emotional support from peers. This included developing and distributing educational content, providing patient navigation services, hosting educational conferences, operating an online community forum for patients and families and providing financial assistance to individuals traveling to participate in clinical trials
Highest reported compensation
2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| HEAD OF PHILANTHROPY Key employee, 40.00 hrs/week | $233,357 | $0 | $9,833 | $243,190 |
| CHIEF SCIENTIFIC OFFICER Key employee, 40.00 hrs/week | $212,495 | $0 | $19,052 | $231,547 |
| EXECUTIVE DIRECTOR & PRESIDENT Director/trustee, officer, 50.00 hrs/week | $184,139 | $0 | $16,421 | $200,560 |
| HEAD OF ENGAGEMENT, CHIEF OF STAFF Officer, 40.00 hrs/week | $150,360 | $0 | $7,468 | $157,828 |
| HEAD OF FINANCE/OPS, ASST TREASURER Officer, 40.00 hrs/week | $138,214 | $0 | $15,605 | $153,819 |
| SENIOR SCIENTIST Highest compensated employee, 40.00 hrs/week | $126,910 | $0 | $14,048 | $140,958 |
| DIRECTOR OF PATIENT SERVICES Highest compensated employee, 40.00 hrs/week | $119,829 | $0 | $16,193 | $136,022 |
| OPERATIONS AND PROGRAM MANAGER Highest compensated employee, 40.00 hrs/week | $102,219 | $0 | $9,259 | $111,478 |
8 people received more than $100,000 in reportable compensation from Chordoma Foundation (Part VII, line 2). Compensation of current officers, directors and key employees totaled $987K (Part IX, line 5).
7 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b13 · 11 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4No
- Over $15,000 of professional fundraising services Part IV 18No
- Over $10,000 of activity outside the U.S. Part IV 14bYes
- Employees Part I, line 516
- Volunteers Part I, line 658
Largest outside contractors
2025 · Form 990, Part VII, Section B · businesses onlyIndividuals listed as contractors are left out. 2 contractors were paid more than $100,000 in all.
Private foundation grants it received
24 private foundations reported grants to Chordoma Foundation totaling $942K on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from Chordoma Foundation's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Chordoma Foundation, you can publish a response that is linked from this page.
Share or embed this breakdown
Of every $100 Chordoma Foundation spent in 2025, $78.73 went to programs. The full breakdown, from its IRS Form 990:
Embed on your site
Similar-sized charities in this cause
- Health Effects InstituteBoston, MA · revenue $13M · programs 87.7% · FY2025
- Eye and Ear FoundationPittsburgh, PA · revenue $14M · programs 85.5% · FY2025
- Coalition of Cancer Cooperative GroupsPhiladelphia, PA · revenue $13M · programs 74.3% · FY2025
- Center for Information and Study on Clinical Research ParticipationBoston, MA · revenue $14M · programs 85.0% · 2025
- American College of EndocrinologyJacksonville, FL · revenue $13M · programs 75.1% · 2025
All medical research charities · Largest charities in North Carolina
Questions people ask
How much of Chordoma Foundation's spending goes to programs?
In calendar year 2025, Chordoma Foundation reported that 78.7% of its $6.1 million in expenses went to program services, 7.8% to management and general and 13.4% to fundraising (Form 990, Part IX).
How much does Chordoma Foundation pay its top executive?
The largest total compensation Chordoma Foundation reported for one person in calendar year 2025 was $243,190, for the role of HEAD OF PHILANTHROPY (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does Chordoma Foundation get its money?
Of $13.4 million in revenue in calendar year 2025, 94.6% came from contributions and grants and 0.0% from program service revenue (Form 990, Part VIII).
Is Chordoma Foundation a registered charity?
The IRS lists EIN 20-8423943 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024, 2025. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2025: Form 990 for calendar year 2025, object 202612559349300301 · read the filing · XML
- 2024: Form 990 for calendar year 2024, object 202501359349303455 · read the filing
- 2023: Form 990 for calendar year 2023, object 202432329349300708 · read the filing
- 2022: Form 990 for calendar year 2022, object 202342359349301504 · read the filing
- 2021: Form 990 for calendar year 2021, object 202231999349300303 · read the filing
- 2020: Form 990 for calendar year 2020, object 202121809349300437 · read the filing
- 2019: Form 990 for calendar year 2019, object 202042169349300509 · read the filing
All filings for EIN 20-8423943: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.