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Daystar for Medically Fragile Children

Also known as Daystar Kids

Rochester, NY · EIN 26-3275794 · 501(c)(3) · Publicly supported organization (509(a)(2))
Latest filing: Form 990 for calendar year 2024 (tax year 2024) · View the filing · Correct or respond

Daystar for Medically Fragile Children reported $10.4 million in revenue and $4.0 million in expenses for calendar year 2024. Of every $100 it spent, $76.48 went to program services, $20.14 to management and general costs and $3.38 to fundraising. Its largest source of revenue was contributions and grants: 70.5% of the total. The highest compensation it reported for one person was $183,803 (CHIEF EXECUTIVE OFFICER). 3 people received more than $100,000 in reportable compensation. Revenue rose 332% between 2019 and 2024. Source: Form 990, 2024.

Where $100 of spending went

Calendar year 2024 · Form 990, Part IX, line 25 · total expenses $4.0M

For context, the median across 3,614 covered human services charities: $88.27 programs, $11.52 management, $0.21 fundraising (medians computed separately, so they may not sum to $100).

Where $100 of revenue came from

Calendar year 2024 · Form 990, Part VIII · total revenue $10M

Other revenue was negative: −$69,922. The bar shows the positive sources only.

The 990 scorecard · same measures for every charity, no grades

2024 filing. Median across 3,614 covered charities in this category, from their latest filings.
Measure2024Median
Program services
Part IX 25(B) ÷ 25(A)
76.5%87.2%
Management & general
Part IX 25(C) ÷ 25(A)
20.1%11.4%
Fundraising
Part IX 25(D) ÷ 25(A)
3.4%0.2%
Fundraising cost per $1 of contributions
Part IX 25(D) ÷ Part VIII 1h
$0.02$0.02
Contributions & grants share of revenue
Part VIII 1h ÷ 12
70.5%20.6%
Government grants share of revenue
Part VIII 1e ÷ 12
0.9%2.4%
Program service revenue share
Part VIII 2g ÷ 12
28.8%70.8%
Highest reported compensation
Part VII-A, columns D–F
$183,803$274,992
Highest compensation as share of expenses
Part VII-A ÷ Part IX 25(A)
4.59%1.18%
People paid over $100,000
Part VII, line 2
36
Net assets, in months of expenses
Part X 33(B) ÷ monthly expenses
49.66.9
Independent voting board members
Part VI 1a–1b
20 of 20100.0%

A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.

What the money paid for, in its own words

2024 · Form 990, Part III · the three largest programs by expense
$2.5M expenses · 80.3% of program spending · revenue $2.4M

Daystar kids provides year-round, full-day specialized pediatric and developmental services to children with complex health care conditions ranging in age from 4 months to 5 years old and empowers children with the skills they need to successfully enter kindergarten with their peers. In 2024, daystar kids provided skilled pediatric nursing services, early childhood and special education programs, health care coordination, family support services, and related therapies onsite to 60 enrollees from 15 school districts within 5 counties in the greater rochester area

$206K expenses · 6.7% of program spending · revenue $206K

Daystar kids' family support services program is supported by new york state office for people with with developmental disabilities and provides essential care coordination services, transitional support services, preventive healthcare services, healthcare navigation assistance, family advocacy, and essential education and training services to up to 50 families annually with an infant or child with complex healthcare conditions and developmental disabilities. During 2024, daystar served 57 families who were approved for this service, empowering them to effectively advocate and manage their…

$396K expenses · 12.9% of program spending · revenue $396K

Daystar kids' early intervention and preschool special services program consists of a dedicated team of related providers expert in working with children with medical complexity to provide assessments, evaluation services, and therapy services. This program improves service integration, linking the agency's curriculum, therapeutic goals, and health care directives to support the individualized needs of each enrollee, and creates unparalleled continuity of care by minimizing patient transitions and disruption of services. During 2024, daystar provided these services to 62 enrollees

Highest reported compensation

2024 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here
RoleFrom this orgFrom related orgsOtherTotal
CHIEF EXECUTIVE OFFICER
Officer, 40.00 hrs/week
$151,848$0$31,955$183,803
CHIEF PROGRAM OFFICER
Highest compensated employee, 40.00 hrs/week
$148,250$0$17,031$165,281
CHIEF HUMAN RESOURCES OFFICER
Highest compensated employee, 40.00 hrs/week
$124,462$0$1,369$125,831
CHIEF FINANCIAL OFFICER
Officer, 40.00 hrs/week
$50,384$0$3,097$53,481
CHIEF FINANCIAL OFFICER
Officer, 40.00 hrs/week
$18,127$0$5,041$23,168

3 people received more than $100,000 in reportable compensation from Daystar for Medically Fragile Children (Part VII, line 2). Compensation of current officers, directors and key employees totaled $260K (Part IX, line 5).

6 years of filings

Form 990, Parts I, VII, IX and X · each row is that year's own filing, linked
RevenueExpenses
$0$5.0M$10M$15M$20M201920202021202220232024$10M$4.0M
FilingRevenueExpensesProgramsNet assetsTop pay
2024 ⓘ$10M$4.0M76.5%$17M$183,803
2023 ⓘ$4.8M$4.1M80.8%$9.7M$172,353
2022 ⓘ$4.4M$3.4M84.4%$8.3M$159,384
2021 ⓘ$8.5M$2.6M80.6%$8.3M$143,326
2020 ⓘ$2.1M$1.9M79.9%$2.2M$137,893
2019 ⓘ$2.4M$2.3M78.3%$2.0M$132,401

Governance answers, as filed

2024 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means
  • Voting board members, and how many are independent Part VI, lines 1a–1b20 · 20 independent
  • Audited financial statements Part XII 2bYes
  • Conflict-of-interest policy Part VI 12aYes
  • Whistleblower policy Part VI 13Yes
  • Document retention policy Part VI 14Yes
  • Independent process for top executive pay Part VI 15aYes
  • Board given the 990 before filing Part VI 11aYes
  • Family or business ties among insiders Part VI 2No
  • Aware of a significant diversion of assets Part VI 5No
  • Excess benefit transaction with an insider Part IV 25aNo
  • Loans to or from insiders outstanding Part IV 26No
  • Lobbying, or a 501(h) election in effect Part IV 4No
  • Over $15,000 of professional fundraising services Part IV 18No
  • Over $10,000 of activity outside the U.S. Part IV 14bNo
  • Employees Part I, line 557
  • Volunteers Part I, line 620

Private foundation grants it received

5 private foundations reported grants to Daystar for Medically Fragile Children totaling $655K on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.

Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.

Correct a figure or respond

Every number above is copied from Daystar for Medically Fragile Children's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Daystar for Medically Fragile Children, you can publish a response that is linked from this page.

Similar-sized charities in this cause

All human services charities · Largest charities in New York

Questions people ask

How much of Daystar for Medically Fragile Children's spending goes to programs?

In calendar year 2024, Daystar for Medically Fragile Children reported that 76.5% of its $4.0 million in expenses went to program services, 20.1% to management and general and 3.4% to fundraising (Form 990, Part IX).

How much does Daystar for Medically Fragile Children pay its top executive?

The largest total compensation Daystar for Medically Fragile Children reported for one person in calendar year 2024 was $183,803, for the role of CHIEF EXECUTIVE OFFICER (Form 990, Part VII, including compensation from related organizations and other compensation).

Where does Daystar for Medically Fragile Children get its money?

Of $10.4 million in revenue in calendar year 2024, 70.5% came from contributions and grants (including 0.9% from government grants) and 28.8% from program service revenue (Form 990, Part VIII).

Is Daystar for Medically Fragile Children a registered charity?

The IRS lists EIN 26-3275794 as a 501(c)(3) organization (publicly supported organization (509(a)(2))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.

Sources

  • 2024: Form 990 for calendar year 2024, object 202543119349302044 · read the filing · XML
  • 2023: Form 990 for calendar year 2023, object 202401159349301505 · read the filing
  • 2022: Form 990 for calendar year 2022, object 202300559349300020 · read the filing
  • 2021: Form 990 for calendar year 2021, object 202201059349301805 · read the filing
  • 2020: Form 990 for calendar year 2020, object 202111099349301276 · read the filing
  • 2019: Form 990 for calendar year 2019, object 202031899349301318 · read the filing

All filings for EIN 26-3275794: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.