Lupus Research Alliance
Lupus Research Alliance reported $23.7 million in revenue and $42.1 million in expenses for calendar year 2025. Of every $100 it spent, $78.66 went to program services, $9.75 to management and general costs and $11.59 to fundraising. Its largest source of revenue was contributions and grants: 50.8% of the total. The highest compensation it reported for one person was $553,849 (CEO AND PRESIDENT). 38 people received more than $100,000 in reportable compensation. Revenue rose 13% between 2019 and 2025. Source: Form 990, 2025.
Where $100 of spending went
Calendar year 2025 · Form 990, Part IX, line 25 · total expenses $42MFor context, the median across 169 covered medical research charities: $87.02 programs, $12.87 management, $0.11 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2025 · Form 990, Part VIII · total revenue $24MThe 990 scorecard · same measures for every charity, no grades
| Measure | 2025 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 78.7% | 83.9% |
| Management & general Part IX 25(C) ÷ 25(A) | 9.7% | 12.4% |
| Fundraising Part IX 25(D) ÷ 25(A) | 11.6% | 0.1% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.41 | $0.01 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 50.8% | 72.7% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.0% | 0.0% |
| Program service revenue share Part VIII 2g ÷ 12 | 8.7% | 5.8% |
| Highest reported compensation Part VII-A, columns D–F | $553,849 | $628,890 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 1.31% | 1.94% |
| People paid over $100,000 Part VII, line 2 | 38 | 18 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 13.9 | 13.3 |
| Independent voting board members Part VI 1a–1b | 23 of 23 | 93.8% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2025 · Form 990, Part III · the three largest programs by expenseThe Lupus Research Alliance (lra), the largest non-governmental, private funder of Lupus Research worldwide. The organization's research committee of the board of directors and scientific advisory board includes top scientific experts, and key lay members of the lra's board of directors, who work with staff to strategically guide and drive the research funding agenda. The lra funds innovative research that spans the spectrum from foundational to clinical research. The lra has invested nearly $228 million in Lupus Research grants including 675+ research grants. In 2025 over $12 million was…
The Lupus Research Alliance (lra) advanced its scientific mission in 2025 by strengthening its research strategy, expanding operational grantmaking activities, and advancing collaborative initiatives designed to accelerate progress in lupus diagnosis, treatment, and clinical trial readiness.in 2025, lra implemented the second year of its 2024-2028 research strategy. As part of this work, lra renewed the common mechanisms in autoimmune diseases program and advanced planning for biomarker and data strategies intended to support more precise, efficient, and collaborative Lupus Research.lra's…
The Lupus Research Alliance (lra)'s advocacy efforts focus on educating congress about lupus and urging congress and the administration to provide the funds and support needed to advance Lupus Research that can lead to better treatments and, ultimately, a cure. The top goals of the Lupus Research Alliance public policy program focus mainly on funding for Lupus Research that will lead to better treatments for people living with lupus. Goals include: increasing federal funding for Lupus Research at the national institutes of health (nih), and specifically the national institute for allergy &…
Highest reported compensation
2025 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| CEO AND PRESIDENT Officer, 40.00 hrs/week | $457,769 | $0 | $96,080 | $553,849 |
| CHIEF SCIENTIFIC OFFICER Officer, 40.00 hrs/week | $339,146 | $0 | $83,817 | $422,963 |
| CHEIF ADVANCEMENT OFFICER Officer, 40.00 hrs/week | $350,753 | $0 | $41,164 | $391,917 |
| CHIEF FINANCAL OFFICER Officer, 40.00 hrs/week | $251,485 | $0 | $88,548 | $340,033 |
| FORMER CEO & PRESIDENT Former, 40.00 hrs/week | $340,000 | $0 | $0 | $340,000 |
| CHIEF CLINICAL RESEARCH OF Officer, 40.00 hrs/week | $282,244 | $0 | $50,676 | $332,920 |
| VP, DEVELOPMENT Officer, 40.00 hrs/week | $270,566 | $0 | $44,585 | $315,151 |
| LUPUS NEXUS DIRECTOR Highest compensated employee, 40.00 hrs/week | $236,282 | $0 | $45,857 | $282,139 |
38 people received more than $100,000 in reportable compensation from Lupus Research Alliance (Part VII, line 2). Compensation of current officers, directors and key employees totaled $3.1M (Part IX, line 5).
7 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2025 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b23 · 23 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2Yes
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26No
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18Yes
- Over $10,000 of activity outside the U.S. Part IV 14bYes
- Employees Part I, line 571
- Volunteers Part I, line 6500
Largest outside contractors
2025 · Form 990, Part VII, Section B · businesses only| EG&A CIRP DBA MCS HEALTHCARE PR Public relations consultant | $451,156 |
| CONVERGENCY LLCCONVERGENCY LLC Lupus abc consultant | $221,473 |
| SCHANER & LUBITZ PLLC Life sciences attorney | $154,107 |
| ULO CONSULTING Lupus nexus consultant | $144,625 |
| LAUTMAN MASKA NEIL AND CO Direct response consultant | $126,000 |
Individuals listed as contractors are left out. 10 contractors were paid more than $100,000 in all.
Private foundation grants it received
54 private foundations reported grants to Lupus Research Alliance totaling $11M on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from Lupus Research Alliance's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Lupus Research Alliance, you can publish a response that is linked from this page.
Share or embed this breakdown
Of every $100 Lupus Research Alliance spent in 2025, $78.66 went to programs. The full breakdown, from its IRS Form 990:
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Similar-sized charities in this cause
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All medical research charities · Largest charities in New York
Questions people ask
How much of Lupus Research Alliance's spending goes to programs?
In calendar year 2025, Lupus Research Alliance reported that 78.7% of its $42.1 million in expenses went to program services, 9.7% to management and general and 11.6% to fundraising (Form 990, Part IX).
How much does Lupus Research Alliance pay its top executive?
The largest total compensation Lupus Research Alliance reported for one person in calendar year 2025 was $553,849, for the role of CEO AND PRESIDENT (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does Lupus Research Alliance get its money?
Of $23.7 million in revenue in calendar year 2025, 50.8% came from contributions and grants and 8.7% from program service revenue (Form 990, Part VIII).
Is Lupus Research Alliance a registered charity?
The IRS lists EIN 58-2492929 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024, 2025. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2025: Form 990 for calendar year 2025, object 202602469349300030 · read the filing
- 2024: Form 990 for calendar year 2024, object 202502549349301630 · read the filing
- 2023: Form 990 for calendar year 2023, object 202412649349300226 · read the filing
- 2022: Form 990 for calendar year 2022, object 202322589349302062 · read the filing
- 2021: Form 990 for calendar year 2021, object 202232579349301913 · read the filing
- 2020: Form 990 for calendar year 2020, object 202112669349301036 · read the filing
- 2019: Form 990 for calendar year 2019, object 202023179349301882 · read the filing
All filings for EIN 58-2492929: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.