Home › Diseases, disorders & medical disciplines
Crohn's & Colitis Foundation
Crohn's & Colitis Foundation reported $85.2 million in revenue and $83.5 million in expenses for calendar year 2024. Of every $100 it spent, $81.42 went to program services, $11.39 to management and general costs and $7.19 to fundraising. Its largest source of revenue was contributions and grants: 86.7% of the total. The highest compensation it reported for one person was $762,198 (PRESIDENT/CEO(NON-VOTING)). 105 people received more than $100,000 in reportable compensation. Revenue rose 15% between 2019 and 2024. Source: Form 990, 2024.
Where $100 of spending went
Calendar year 2024 · Form 990, Part IX, line 25 · total expenses $84MFor context, the median across 314 covered diseases, disorders & medical disciplines charities: $88.73 programs, $10.89 management, $0.38 fundraising (medians computed separately, so they may not sum to $100).
Where $100 of revenue came from
Calendar year 2024 · Form 990, Part VIII · total revenue $85MThe 990 scorecard · same measures for every charity, no grades
| Measure | 2024 | Median |
|---|---|---|
| Program services Part IX 25(B) ÷ 25(A) | 81.4% | 86.7% |
| Management & general Part IX 25(C) ÷ 25(A) | 11.4% | 10.6% |
| Fundraising Part IX 25(D) ÷ 25(A) | 7.2% | 0.4% |
| Fundraising cost per $1 of contributions Part IX 25(D) ÷ Part VIII 1h | $0.08 | $0.03 |
| Contributions & grants share of revenue Part VIII 1h ÷ 12 | 86.7% | 24.7% |
| Government grants share of revenue Part VIII 1e ÷ 12 | 0.6% | 0.6% |
| Program service revenue share Part VIII 2g ÷ 12 | 10.7% | 59.5% |
| Highest reported compensation Part VII-A, columns D–F | $762,198 | $391,657 |
| Highest compensation as share of expenses Part VII-A ÷ Part IX 25(A) | 0.91% | 1.45% |
| People paid over $100,000 Part VII, line 2 | 105 | 10 |
| Net assets, in months of expenses Part X 33(B) ÷ monthly expenses | 0.5 | 7.6 |
| Independent voting board members Part VI 1a–1b | 26 of 26 | 100.0% |
A median is context, not a target: hospitals, universities, food banks and grantmakers spend in very different ways. What these measures can and can't tell you.
What the money paid for, in its own words
2024 · Form 990, Part III · the three largest programs by expenseSince its inception, the crohn's & Colitis Foundation has provided more than $500 million for research on the treatment and cures of ibd. The foundation funds a set of priority research initiatives: multi-institutional, multi-disciplinary, collaborative research projects targeting areas of science with a high probability of advancing treatment. The foundation has defined itself by sponsoring the best and brightest researchers resulting in groundbreaking studies and research initiatives to advance the understanding and treatment of inflammatory bowel diseases ("ibd"). (continued in schedule…
The crohn's & Colitis Foundation provides information and education for the millions of individuals with ibd and their loved ones through a variety of channels at the national and local level including in-person and web-based education, support programs including pediatric and adult focus initiatives, ibd help center answering questions and provding support for those with ibd, and numerous printed materials providingaccurate and up-to-date information. In a recent impact study, over 85% of patients connected with the foundation stated that the foundation has had a positive impact on their ibd…
Highest reported compensation
2024 · Form 990, Part VII, Section A · roles as filed; names are in the filing, not here| Role | From this org | From related orgs | Other | Total |
|---|---|---|---|---|
| PRESIDENT/CEO(NON-VOTING) Director/trustee, officer, 35.00 hrs/week | $604,255 | $0 | $157,943 | $762,198 |
| CHIEF SCIENTIFIC OFFICER Key employee, 35.00 hrs/week | $450,466 | $0 | $13,858 | $464,324 |
| CHIEF TECHNOLOGY OFFICER Key employee, 35.00 hrs/week | $304,578 | $0 | $78,567 | $383,145 |
| CHIEF OP. OFF./CHIEF FIN. Officer, 35.00 hrs/week | $267,379 | $0 | $70,733 | $338,112 |
| CHIEF LEGAL OFFICER Highest compensated employee, 35.00 hrs/week | $259,396 | $0 | $76,835 | $336,231 |
| CHIEF DEVELOPMENT OFFICER Key employee, 35.00 hrs/week | $273,205 | $0 | $22,804 | $296,009 |
| CHIEF MKTNG. & COMM. OFFCR. Key employee, 35.00 hrs/week | $256,701 | $0 | $26,914 | $283,615 |
| VICE PRESIDENT, IBD PLEXUS Highest compensated employee, 35.00 hrs/week | $259,396 | $0 | $17,475 | $276,871 |
105 people received more than $100,000 in reportable compensation from Crohn's & Colitis Foundation (Part VII, line 2). Compensation of current officers, directors and key employees totaled $3.7M (Part IX, line 5).
6 years of filings
Form 990, Parts I, VII, IX and X · each row is that year's own filing, linkedGovernance answers, as filed
2024 · the organization's own yes/no answers; explanations, if any, are in Schedule O of the filing · what each means- Voting board members, and how many are independent Part VI, lines 1a–1b26 · 26 independent
- Audited financial statements Part XII 2bYes
- Conflict-of-interest policy Part VI 12aYes
- Whistleblower policy Part VI 13Yes
- Document retention policy Part VI 14Yes
- Independent process for top executive pay Part VI 15aYes
- Board given the 990 before filing Part VI 11aYes
- Family or business ties among insiders Part VI 2No
- Aware of a significant diversion of assets Part VI 5No
- Excess benefit transaction with an insider Part IV 25aNo
- Loans to or from insiders outstanding Part IV 26Yes
- Lobbying, or a 501(h) election in effect Part IV 4Yes
- Over $15,000 of professional fundraising services Part IV 18Yes
- Over $10,000 of activity outside the U.S. Part IV 14bYes
- Employees Part I, line 5372
- Volunteers Part I, line 66,005
Largest outside contractors
2024 · Form 990, Part VII, Section B · businesses only| NAGARRO INC Project support | $2,510,209 |
| SRIJAN TECHNOLOGIES USA INC Web development services | $1,686,221 |
| SALESFORCECOM INC Database/it services | $969,096 |
| RUE CLAIR DIGITAL LLC DBA STREETLIGHT DI Marketing services | $959,576 |
| DELOITTE CONSULTING LLP It support | $733,714 |
Individuals listed as contractors are left out. 22 contractors were paid more than $100,000 in all.
Private foundation grants it received
305 private foundations reported grants to Crohn's & Colitis Foundation totaling $9.7M on their tax year 2023 Form 990-PF returns. See which foundations, on WHOFUNDS.
Source: WHOFUNDS open grant graph, matched from Form 990-PF Part XV.
Correct a figure or respond
Every number above is copied from Crohn's & Colitis Foundation's own Form 990. If one doesn't match the filing, that's our error and we'll fix it. If you work for Crohn's & Colitis Foundation, you can publish a response that is linked from this page.
Share or embed this breakdown
Of every $100 Crohn's & Colitis Foundation spent in 2024, $81.42 went to programs. The full breakdown, from its IRS Form 990:
Embed on your site
Similar-sized charities in this cause
- Siouxland Regional Cancer CenterSioux City, IA · revenue $78M · programs 95.1% · FY2025
- March of DimesArlington, VA · revenue $85M · programs 74.6% · 2025
- AIDS CARE GroupChester, PA · revenue $77M · programs 98.0% · FY2025
- Equitas HealthColumbus, OH · revenue $86M · programs 69.2% · FY2025
- Trenton Medical CenterHigh Springs, FL · revenue $77M · programs 81.6% · FY2025
All diseases, disorders & medical disciplines charities · Largest charities in New York
Questions people ask
How much of Crohn's & Colitis Foundation's spending goes to programs?
In calendar year 2024, Crohn's & Colitis Foundation reported that 81.4% of its $83.5 million in expenses went to program services, 11.4% to management and general and 7.2% to fundraising (Form 990, Part IX).
How much does Crohn's & Colitis Foundation pay its top executive?
The largest total compensation Crohn's & Colitis Foundation reported for one person in calendar year 2024 was $762,198, for the role of PRESIDENT/CEO(NON-VOTING) (Form 990, Part VII, including compensation from related organizations and other compensation).
Where does Crohn's & Colitis Foundation get its money?
Of $85.2 million in revenue in calendar year 2024, 86.7% came from contributions and grants (including 0.6% from government grants) and 10.7% from program service revenue (Form 990, Part VIII).
Is Crohn's & Colitis Foundation a registered charity?
The IRS lists EIN 13-6193105 as a 501(c)(3) organization (publicly supported organization (170(b)(1)(a)(vi))), and its records show contributions as tax-deductible. Form 990 filings on record here cover tax years 2019, 2020, 2021, 2022, 2023, 2024. A filing shows what the organization reported; it doesn't by itself show whether a program works.
Sources
- 2024: Form 990 for calendar year 2024 (amended), object 202620359349301112 · read the filing · XML
- 2023: Form 990 for calendar year 2023, object 202443099349301569 · read the filing
- 2022: Form 990 for calendar year 2022, object 202333179349300043 · read the filing
- 2021: Form 990 for calendar year 2021, object 202233189349308388 · read the filing
- 2020: Form 990 for calendar year 2020, object 202113169349303011 · read the filing
- 2019: Form 990 for calendar year 2019, object 202023189349305942 · read the filing
All filings for EIN 13-6193105: ProPublica Nonprofit Explorer · IRS Tax Exempt Organization Search. Figures are as the organization reported them; we have not audited them.